Om 1step2life: For those living with chronic pain and the people who love them.
Honest talk for people living with persistent pain, chronic illness long COVID or other complex medical conditions. Nancy Darling is a psychologist who studies adolescent parenting and the mom of a son with severe chronic migraines.
Living with chronic pain or illness shrinks your world, limits your social life, and makes even small things an effort. We discuss information common to folks living with chronic illness. Many of our podcasts are for caregivers - particularly parents - who support people who live with pain.
These podcasts grow out of the 1step2life.com blog.
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Why Did A Psychologist Who Studies Families Develop An App for Tracking Pain? (00:09:25)
When her son developed severe chronic migraine at age 14, Dr. Nancy Darling developed an app to help parents of children in pain support their children. The app, 1step2life, is built on cutting edge developmental and rehabilitative science. It is the only app that helps parents and caregivers as well as people living with pain.
Pain & the TMJ: It's Complicated! (00:04:47)
The TMJ joins the jaw to the skull. It's complex, closely linked to facial nerves, & under tremendous stress. No wonder it often causes pain.
If you're interested in learning more about TMJ disorders, try the following links:
National Institute of Dental and Craniofacial Research.
Michigan Medicine at the University of Michigan .
WebMD
Chronically Ill Teen? Fighting the Dread (00:09:25)
Dread comes from one more day of pain, Two more days missed school. Three more failed classes. Seeing your child's future slip away. When every little failure looms into a life lost.
It's time to step back.
From the original post on the 1step2life.com website. 1step2life is the only app with a Caregiver mode for parents and partners of people living with chronic pain.
Ganglia, Facial Nerves, & SPG Blocks (00:09:15)
In this two part episode, Andrew Burns talks about facial nerves and ganglia and how SPG blocks can be used to stop pain originating in facial nerves and ganglia.
If you'd like to look at diagrams showing the anatomy being discussed, please check out the original essays at 1step2life. We also have a YouTube video describing nerve functioning available through that same essay.
Why Are My Hands Green? An Introduction To Raynaud's Syndrome (00:07:40)
Raynaud's phenomenon is an unusual circulatory problem where a twitchy, sensitive nervous system can over-react to cold or stress.
Originally published by 1step2life.com.
The Trigeminal Nerve (00:03:41)
The head and face are highly innervated. One of the most important nerves is the trigeminal, which sends information from the temples and face to the brain. The trigeminal nerve is the nerve most closely associated with migraine disease and trigeminal neuralgia.
From a 1step2life.
Pain Is In Your Head. It's Still Real. (00:11:32)
The bio-psycho-social model of pain provides multiple ways to reduce pain by interfering with how painful stimuli are processed.
Check out original post on the 1step2life website.
Why The Definition Of Pain Matters (00:06:50)
In 2020, the International Association for the Study of Pain revised its definition of pain. The work involved several years of interviews with multiple stakeholders and much debate. The revised definition of pain distinguishes healthy pain that protects us from harm from unhealthy pain that is a disease unto itself. But does it matter? Don't we already know what pain is?
Read the original essay on the 1step2life website.
Post Pandemic Socializing: Dipping Your Toes In The Water (00:03:58)
It's been fantastic seeing folks again and dipping my toes back into the world. But even in the 'before' times I needed quiet time by myself to regenerate and get back into the social whirl. After a year of near solitude, going slowly seems the path of wisdom.
First published ib 1step2life.com on April 12, 2021.
Keeping What’s Good About This Crazy Year (00:06:59)
One of the things that has been so frustrating about lockdown is that it is so clear that disabled people and folks in pain could have been served better. My son now (finally) has good days every week and good hours every day. But he doesn't have the same good hours every day. And they sure as heck don't line up with a school or work schedule. . If COVID has taught us nothing else, it's taught us that work and school can be a lot more flexible than they have been. It's time to ask for a change. For disabled people. For caregivers who need to be able to adjust their work so they aren't making decisions about leaving a sick or endangered child at home and earning a paycheck. Or between sending them to school not knowing if they can make it through the day or keeping them home so they don't get called away from work. . I always recommend this exercise because it focuses my mind. Try it.
First published by 1step2life.com on April 12, 2021.
Challenge Support & Love (00:04:58)
When your child is hurting, all you want to do is wrap them in cotton wool and protect them in every way you can. But what if that's not what they need?
From Challenge, Support, & Love by 1step2life.com.
How Do Doctors Build Trust? (00:03:53)
Many people who live with persistent pain, chronic illness, long COVID or other medically complex conditions have strong feelings about doctors. Some of those feelings are good. Others . . . . not so much. This episode talks about some of the things doctors do to help build trust and why it's so important.
From How Doctors Build Trust, published by 1step2life.com
When Your Child Says They're In Pain - BELIEVE THEM! (00:09:52)
Believing your child in pain builds your relationships and helps them keep going because they know you have their back. Discusses the importance of trust for building and maintaining your relationship, gaslighting, how doubt forces kids to act out their pain to be taken seriously, and attachment style.
You can check out the original essay and many other resources for people in pain and their parents here.
Supporting Parents of Teens & Children In Pain (00:10:10)
The 1step2life app was designed by me - a developmental psychologist whose son lives with severe chronic pain. Even though I'm an international expert on parenting, I knew that everything I was doing was undermining my relationship with my son. Ironic, no?
1step2life was designed for parents and other caregivers trying to support the people they love who are living with pain. This podcasts talks about how it works and why it does what it does.
You can read the original blog on our website.
Balancing Challenge & Support (00:09:11)
Kids thrive when they experience the maximum of challenge and the maximum of support and feel your unconditional love.
In this podcast, I talk about psychologist Urie Bronfenbrenner and findings on what really helps kids thrive.
Quieting Your Inner Voices So You Can Hear What They Say (00:03:51)
Sometimes our distress at our child's pain is so overwhelming that it can drown out theirs. When that happens, we can increase their distress because we do the wrong thing and doing 'meet their needs.
This is a podcast of an essay first published on the 1step2life website for people living with chronic pain and those who love them.
How To Help Your Child In Pain: Listen (00:04:34)
When our child is sick or in pain, our first instinct can be to rush in and help. Short term, that may be great. Some days, that may be great. But long term, it's not good for you, not good for them, and not good for your relationship.
From the original essay on 1step2life.com.
Living With a Low Tyramine Diet: Shopping & Cooking (00:05:44)
Following any special diet is hard. With tyramine it is particularly hard, because it involves not only finding and cooking the right foods, but also handling the foods you buy in particular ways.
This episode talks about how to make low tyramine part of your life.
You can find the original post on our blog on 1step2life. You can also download a handout summarizing basic facts about tyramine and how to live with tyramine sensitivity in your life.
Is Tyramine Intolerance Triggering Your Stress Headaches & Vomiting? (00:12:51)
Tyramine is an amino acid present in most foods. It gets higher in aged foods like cheese, yogurt, deli means, and leftovers and in soy, snow peas, and dried beans.
This causes no problem in most people. Those who are tyramine sensitive, however, it can trigger severe brain fog, migraine attacks, vomiting, gastrointestinal problems, high blood pressure, and heartbeat irregularity.
This episode discusses what tyramine is, how it affects tyramine sensitive people, and how and why to eat a low tyramine diet.
Check out the accompanying blog at 1step2life/tyramine or our app on Google Play or the App Store.
What's This About Gluten? Wheat Allergies, Gluten Sensitivity & Celiac Disease (00:05:01)
People who have wheat allergies, gluten sensitivities, and celiac disease all avoid bread and other grains with gluten. The three conditions are different, however, each with a different symptom profile.
Want to learn more? Read the original blog and related information at 1step2life.com.
Biofeedback: Another Tool In Your Kit (00:03:36)
Biofeedback is a powerful tool to help you reduce stress and improve functioning. Sean Burns talks about using biofeedback to help him cope with severe migraine disease.
To learn more, visit us at 1step2life.com!
Can Stoicism Make You A Happier Parent? (00:08:35)
Because we care so much about our parenting, it's easy to feel anxious and worried that we haven't done enough. That's particularly true when your child is chronically ill or in pain. Studying Stoicism has helped me here.
Stoicism is NOT about burying your emotions, toxic positivity, or being cold and removed. Rather, it's about understanding what you can do and what you can't - and focusing your time, efforts, and happiness on doing what you can. Stoics base their happiness on what they can control - their own actions - not on an outcome that they can't. That's a great philosophy for spoonie moms.
Interested in learning more? Visit us at 1step2life.com.
Are You Drinking TOO MUCH Water? (00:06:59)
Anyone who is chronically ill gets really tired of being asked if they're drinking enough water. In this episode, I talk about why they're asking, what they mean by 'enough', and how you can tell if you're drinking too much or too little.
Visit the original post at 1step2life.com.
Are Migraines Caused By An Echo In The Brain? (00:05:43)
Intriguing research suggests that neurogenic pain like migraines may be caused by an 'echo' in the brain. If you'd like to check out the links and associated videos, check out the original essay at 1step2life.com.
