Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.
📻 Siste episoder av A Mama’s Xtra Love
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It’s the first episode of A Mama’s Xtra Love Podcast! Woohoo! Tune in to hear about the power of early intervention and how it’s impacted our son’s life tremendously.
Q&A Part 1: Fragile X Treatments, Anxiety and more! (00:16:17)
Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!
I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including ...
The Raw Realities of Grief & More! (00:19:54)
Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!
A Fragile X Family’s Diagnosis Journey (00:34:27)
It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!
An Update on our Fragile X Journey! (00:21:24)
During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!
An Important Message from Talk Fragile X (00:21:55)
It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!
Talk Fragile X is Back with News! (00:16:46)
It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!
Why Should We Advocate for Inclusion in the Workplace and in the Community? (00:20:43)
October got away from me, but I still wanted to share this important episode with you all! After all, Disability Employment Awareness shouldn’t just be focused on for one month out of the year, but ra...
Special Guest: Rob Snow, Director of the CEO Commission for Disability Employment (00:55:48)
The CEO Commission for Disability Employment was created to increase opportunities for individuals with disabilities to obtain and/or maintain employment. The CEO Commission for Disability Employment ...
This month is Disability Employment Awareness Month! I'm SO passionate about this very topic! As an Employment Specialist who sees and experiences firsthand the challenges and difficulties of promotin...
An Update from FRAXA Research Foundation’s Katie Clapp & Holly Roos! (00:24:39)
I had the pleasure of welcoming Katie Clapp and Holly Roos from FRAXA Research Foundation on this weeks episode of Talk Fragile X! Katie and Holly talked all things World Fragile X Day 2023, as well a...
Fragile X Awareness Month & A Suprise Announcement! (00:27:18)
Fragile X Syndrome is the leading genetic cause of Autism. It's caused by a mutation of the FMR1 gene responsible for cognitive and behavioral development. Fragile X is often passed on unknowingly. Th...
Life Update! (00:27:57)
I'm back! It's been several months since I've released a new episode. It's been a hard last couple of months for so many reasons. I shed some more light on this in the episode, and I hope you'll take ...
The One Where It's The First Episode of 2023!! (00:17:52)
It's crazy that we are in 2023 now! I had a great time off my podcast duties for the last month or so of December, and now I'm ready to get to work! What better way to kick off the new year with a rar...
The One Where It's The Last Episode of 2022! (00:20:34)
If you caught the Friends reference in the title, big thumbs up to you! If not, it's okay, you're still welcome here! It's crazy to think this is our last episode of 2022, but we are here! I will be t...
In this week's episode, I talk about the importance of Disability Employment Awareness Month, and how it's an opportunity to talk about the transition for our neurodiverse peers from high school to co...
What More Special Needs Families Should Be Talking About! With Special Guest: Ashley Zazueta (00:59:42)
Something that doesn’t seem to be talked about enough is the journey of finding the right therapists for our special needs children! For so many families, this can be a very challenging and emotional ...
Life Update! (00:21:43)
Happy September! On this weeks episode of Talk FX I share some life updates and the importance of encouraging our neurodiverse peers to expand their comfort zones, and how I've been able to see this f...
A Raw Conversation with Andrea Miller (01:09:08)
About a year ago, I had the pleasure of meeting Andrea when she reached out to me on social media one day. We ended up connecting on a phone call and talked about life, family, faith, and of course Fr...
We Must Do Better! (00:25:20)
This is an important episode that I hope you will listen to, share, and be encouraged by. I also hope that you will hear my heart in why we have work to do to continue to work towards a more inclusive...
How do we maintain hope? (Part 1) (00:25:12)
Maintaining hope in our lives is a daily journey. Whether you're a parent of someone with Fragile X, self-advocate or full-mutation carrier. Often times the amount of hope we have is dependent on how ...
Special Guest: Stephanie Hanrahan Blogger & Founder of the Non-Profit Labeled and Loved (00:36:21)
Stephanie Hanrahan was just your seemingly average housewife until she grew tired of pretending and decided to make her private journal public. Since sharing her story, Stephanie has achieved viral su...
Fear & Anxiety Part 2 With Kirsten Fowler (00:50:56)
I can’t say enough about Kirsten Fowler! She’s a mother to three children with full-mutation Fragile X, is a female Full-Mutation carrier just like myself, and is overall just one of the most kind and...
THIS is why inclusion is important! (00:20:59)
This is an important episode that I hope each and every one of you will take the time to listen to! Please share with your friends, family and whoever else that you feel could benefit from hearing thi...
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