An exploration of living with, not "in spite of" chronic illness and disability.
This Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.
To get in touch email hello@alivewithchronicillness.com.
📻 Siste episoder av Alive with Chronic Illness
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Writing with Chronic Illness | Sarah Colliver (00:42:34)
In this episode we are joined by author Sarah Colliver, who shares her experience of writing with chronic illness. She talks about her health journey, and the realities of writing while balancing work and health. This episode is dedicated to the memory of Pat Raymond. 🏘️ Our community: https://discord.gg/CQJMmgYPVY📰 Our newsletter: http://alivewithchronicillness.substack.com/Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Running a Business with Chronic illness | Christina Lucille (00:57:39)
Christina Lucille owner of the Chronic Pop Shop joins us for a unfiltered account of what it's like to run a business when you are chronically ill. She talks about the realities of profit margins, fatigue, and social media algorithms. 🏘️ Our community: https://discord.gg/CQJMmgYPVY📰 Our newsletter: http://alivewithchronicillness.substack.com/Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Towards a More Inclusive Future | Dr Maria Garcia (00:46:38)
For this episode we are joined by Maria Garcia a doctor and a patient. She shares her experience of living with a spinal cord injury and reflections on a more inclusive future. 🏘️ Our community: https://discord.gg/CQJMmgYPVY📰 Our newsletter: http://alivewithchronicillness.substack.com/Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Assistive Technology with Matthew Horspool (01:10:59)
In today's episode I am joined by Assistive Technology Trainer Matthew Horspool who talks about his experience as a blind person, and shares helpful tips on utilising assistive technology. You can learn more about Matthew's work here: linkedin.com/in/matthew-horspool-20856517a. You can up to our newsletter for podcast summaries and more content on living with chronic illness here: http://alivewithchronicillness.substack.com/.Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Scott Whitney All 4 Inclusion (00:36:10)
In today's episode I am joined by All 4 Inclusion founder Scott Whitney. All 4 Inclusion is a UK based community interest company dedicated to building connection and community. They host multiple online events each week that bring people together and encourage people to talk. Scott shares his experience of living with disability, and his journey to founding All 4 Inclusion. Learn more about All 4 Inclusion here: https://www.all4inclusion.org/You can up to our newsletter for podcast summaries and more content on living with chronic illness here: http://alivewithchronicillness.substack.com/.Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Brian: Living with Ehlers-Danlos Syndrome (00:27:42)
In todays episode we are joined by Brian Reeve-Hayes a secondary school teacher who shares his experience of living, working and parenting with Ehlers Danlos Syndrome. We chat about the pathway to diagnosis, private vs NHS care, and balancing work and parenting with healthcare. You can up to our newsletter for podcast summaries and more content on living with chronic illness here: http://alivewithchronicillness.substack.com/.Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Aimee: Working with Post Viral Chronic Fatigue (00:47:22)
In today's episode I am joined by Aimee (@fatiguediaries), who shares her experience of working with Post Viral Chronic Fatigue. We talk about the realities of working with chronic illness, and the options that are available to disabled people such as phased returns. To learn more about Aimee follow her instagram @fatiguediaries where she shares insights into her daily life. Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Book Chats: Out on a Limb by Hannah Bonam-Young (00:40:00)
In todays episode I am joined by my sister Melissa to chat about disability representation in literature. We explore Out on a Limb by Hannah Bonam-Young, chat about coffee cake, and inclusion. ✨ The first section is spoiler free and we let you know before we dive into spoiler territory. ✨Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Kait: Living with Miserable Malalignment Syndrome (00:35:35)
Occupational therapist Kait joins us for this months episode of the Alive with Chronic Illness. She shares her experience of living with Miserable Malalignment Syndrome, and how her career has been impacted by the condition.We explore perceptions of pain, and how for some people who have always lived in pain the idea of not being in any pain at all can seem unrealistic or even impossible.Kait shares her experience of surgery, and how the skills she has gained from her career have helped support her recovery.Content note: This episode contains discussions of surgery.Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.Intro and outro audio by podcast.co.
Gentle Goal Setting with Caitlin Oliver (00:37:14)
In this month's episode of the Alive with Chronic Illness Podcast we are joined by Caitlin Oliver to explore gentle goal setting. We talk about setting realistic and accessible goals, and how we can step away from pressure to keep achieving more and instead appreciate the journey with all the milestones along the way.To learn more about Caitlin's work visit their website here: https://www.caitlinoliver.com/Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Book Chats with Mel (00:42:38)
As the year draws to a close I invite my sister Melissa to chat about some of our favourite reads, and most importantly favourite snacks. Books mentioned in this episode: The Pumpkin Spice Café by Laurie GilmoreThe Wisteria Society of Lady Scoundrels by India HoltonThe Country Village Allotment by Cathy LakeThe Very Secret Society of Irregular Witches by Sangu Mandanna Howl's Moving Castle by Diana Wynne JonesThe House in the Cerulean Sea by TJ KlunePlease note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. We use affiliate links, and may receive a commission on any products purchased through those links. Intro and outro audio by podcast.co.
Ellie Howe: A Note of Hope (00:39:29)
In today's episode I am joined by Ellie Howe, founder of A Note of Hope. Ellie lives with multiple health condition including, Gastroparesis, POTS, and Vascular Compressions - Superior Mesenteric Artery Syndrome (SMAS) and Nutcracker Syndrome. She shares her health journey, and the motivation behind creating A Note of Hope. Content note: this episode contains discussions of surgery and palliative care. You can learn more about Ellie and A Note of Hope here: https://www.anoteofhope.com.Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Stacey Cann: Parenting with Chronic Illness (00:29:55)
In today's episode I'm joined by Franchise Strategist Stacey Cann who shares her experience of parenting and working with chronic illness. Stacey shares her experience of pregnancy and the impact it had on her health, what it's like to navigate parenting with an energy limiting condition, and how franchising has made work more accessible for her. You can learn more about Stacey Cann and her work here: https://www.staceycann.com/.Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Charlene Thompson Working with ADHD and Autism (00:36:47)
Today I'm joined by Charlene Thompson a sales operations expert, sharing her experience of working with ADHD and Autism. We chat about work culture and the importance of acknowledging our own worth. As well as the journey to diagnosis, and some reasons people may choose not to seek one. You can learn more about Charlene Thompson and her work here: https://salesopseffect.com/Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Amy Corfeli: Living with Endometriosis (00:34:25)
Today I am joined by Amy Corfeli, an endometriosis advocate and host of the podcast In Sixteen Years of Endometriosis. She shares her journey to diagnosis and in keeping with her book Finding Peace with Devastating Disease, how she's learning to find peace living with endometriosis. You can learn more about Amy and her work here: www.insixteenyears.com.Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Rev. Christine Vaughan Davies: Living with Epilepsy (00:33:44)
Today I am joined by Rev. Christine Vaughan Davies, Spiritual Director and ACPE Certified Educator, as she shares her experience of living and working with Epilepsy. Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Grace Quantock: Living Well with Chronic Illness (00:40:10)
In today's episode I am joined by Grace Quantock to chat about her new book "Living Well with Chronic Illness", a thoughtfully written guide full of journaling prompts and tips. Visit Grace's website here: https://www.gracequantock.com.With thanks to Grace for providing me with a copy of her book. Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Sibling Loss with Jan (00:23:36)
Content note: this episode includes discussion of grief, loss and death. For sepsis awareness month Jan and I explore what it's like to live with grief as bereaved siblings. We discuss sepsis and how little we knew about it prior to and following our sister's deaths. To learn more about sepsis please visit: https://www.nhs.uk/conditions/sepsis/. Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement. Intro and outro audio by podcast.co.
Working with Chronic Illness with Lixxy (00:24:43)
I chat with Business Strategist Lixxy Harkcom about what it's like to work with chronic illness, and she shares her top tips. To learn more about Lixxy visit her website here: https://sixfiguresuccess.club/. Intro and outro music by podcast.co.
Access to Work with Saima (00:38:11)
For today's episode Saima shares her experience of Access to Work and her tips for anyone looking to apply. She offers insight into the process, what to expect and what you may be eligible for. To learn more and to apply for Access to Work visit: https://www.gov.uk/access-to-work
Sustainable Working (00:18:25)
This episode explores sustainable working with chronic illness, as well as my top tips for working sustainably.
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