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Alopecia Life

Alopecia Life

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Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

Siste episoder av Alopecia Life podcast

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  1. S7E1 From Clinic to Community: A Dermatologist's Mission, with Dr. Alanna Bree (00:59:10)

    Welcome back to the podcast.I'm so excited to start Season 7 of Alopecia Life with a guest who has a passion for making the world a better place for children impacted by skin conditions and birthmarks. She also loves building relationships and collaborating with others since she believes we are better when we lift one another up so we can all become the best versions of ourselves. Dr. Alanna Bree is a Pediatric Dermatologist, Founder and President of Made A Masterpiece, Director of Pediatric ...

  2. S6E7 Hairless But Fearless, with Arron Johnson (00:31:20)

    Welcome to this episode of Alopecia Life. It's been awhile since I've published an episode. I've been working on some big projects, and life has had a way of getting reorganized as time goes by. Thank you so much for coming back and for listening today. I'm excited to introduce Arron Johnson as our guest today. Arron shares his personal alopecia story with us from the point he was diagnosed at the age of 15. Over the last 25 years, Arron transformed from a teenager hiding behind du-rags and h...

  3. S6E6 2025 with the Children's Alopecia Project for Podcasthon (01:15:28)

    Welcome to this episode of Alopecia Life. We are so happy to participate in this 3rd edition of Podcasthon! For one week, more than a thousand podcasts will highlight a charity of their choice, and today, I have the pleasure of welcoming back Jeff Woytovich with the Children's Alopecia Project. In this episode, we talk about what's new for CAP, JAK Inhibitors, along with the ongoing conversation about community and how we continue to be supportive and focus on education. We talk about h...

  4. S6E5 When to Brave the Shave with Sarah Durrett (00:44:24)

    Welcome to this episode of Alopecia LIfe. Today's guest is Sarah Durrett. I reached out to Sarah a few weeks ago after she posted a video of herself shaving the last of her hair off after living with alopecia areata for several decades. The video is super raw, and I truly felt with her in the moment while she shared. It had a strong effect on me, and I knew for those who hadn't yet seen it and were going through something similar - it would be super helpful. When our hair is acti...

  5. S6E4 Alopecia, Mindfulness & Holding Space for Yourself with Jen Baradi (00:29:23)

    Thank you so much for joining us for this episode of Alopecia Life. I've been waiting to share this episode with all of you because I knew it was important to release it at this unusual time in the US that has been so full of unrest. I'm editing this the week before our presidential election, at a time where a lot of stress and imbalance is working to right itself. Although this week has already played out and I have no idea of the outcome while editing, my wish is that today's guest, Jen Bar...

  6. S6E3 Hair-Free Horace! My Alopecia Adventure with Sharlay Sloss (00:17:58)

    Thank you for joining us for this episode of Alopecia Life. Today's guest is Sharlay Sloss. Sharlay is a certified doula, teacher and author. She is dedicated to fostering positive and healthy environments where children can express themselves and fully embrace self-love. As a teacher, she has been the recipient of multiple awards including the Heart Award for her dedication and commitment to children and their families. Sharlay lives in Virginia with her husband, two children and dog R...

  7. S6E2 Partying with a Purpose, with Elyssa Green (00:30:20)

    Thank you for joining us for this episode of Alopecia Life. Today's guest is Dr. Elyssa Green. Dr. Elyssa is a woman making a significant impact in the world of alopecia. After being diagnosed with alopecia in 2022, she shaved her head and embraced the beauty of baldness. Even though that sounds like an easy 2-step process, she shares the personal challenges and triumphs that led her to help others struggling with the diagnosis and all that comes with the hair loss journey. Dr. Green establis...

  8. S6E1 Different at School with Jodie Lee (00:26:39)

    Welcome to Season 6 of Alopecia Life. Each September, I have a back-to-school episode and find a guest to share how to make the transition easier. Historically, these are the ones that parents ask me about the most too. Our guest today is Jodie Lee. Jodie is a dedicated educator with 15 years of experience as a high school teacher. She is a passionate advocate for celebrating diversity and fostering inclusivity in schools. Jodie is the proud mother of two daughters, and her youngest, Makenna,...

  9. S5E10 Ava Hanssen Racing - Racing & Raising Alopecia Awareness (00:12:48)

    Welcome to this episode of Alopecia Life. Our next guest is Ava Hanssen. I first heard about Ava when the Children's Alopecia Project reached out to say thank you for featuring them on her race car. Her racing background is super interesting, and after hearing more about who she is and what she wants to accomplish in the racing world, I thought you would all be excited to hear more about her racing, especially if you're like me and have a fairly limited bit of knowledge around the racing worl...

  10. S5E9 Gut Healing & How to Reclaim Your Health with Lisa Taylor (00:44:18)

    Welcome to this episode of Alopecia Life. For those who have listened to past episodes, you may remember the 3 healthy habits to have in our lifestyle toolbelt that Integrative Nutrition and Gut Health Coach, Lisa Taylor, provided to all of us to start and continue a self-healing journey. Lisa is back to share about her upcoming FREE masterclass in March, along with her 12 week Alopecia Warrior Self-Healing collective group program. I believe we are becoming more empowered with our heal...

  11. S5E8 Operation Hat Drop, with Allison & Anthony D'Alessandro (00:26:26)

    Thank you for joining us for this first Alopecia Life episode of 2024. It's a new year, and I'm so excited to have a feel-good story for you today. Our guests today are Allison & Anthony. I found out about this fabulous family within a group where Allison shared about the hat collection that was growing exponentially after they started a small ask of their friends and family to help support Anthony. Due to the number of hats they were receiving, she knew she wanted to find more kids who m...

  12. S5E7 How to Share Your Story & Have It Make An Impact with your College Essay, with Jill Shulman (00:51:04)

    Welcome to this episode of Alopecia Life. A few months ago, I was talking with Kylie, another CAP mentor, who expressed an interest in helping college-bound kids share their alopecia story in the essay portion of their college application. I thought it was a fantastic idea, and got to work looking for the perfect podcast guest to speak on this topic, and found Jill Shulman. Jill is the author of College Admissions Cracked: Saving Your Kid (and Yourself) From the Madness. She is an estab...

  13. S5E6 Boundaries Around Holidays and Gatherings (00:03:33)

    Welcome to this episode of Alopecia Life. The time for gatherings is here. Holidays, work parties, get-togethers with friends and family that "should" be fun. But...sometimes these gatherings turn into colossal upsets due to well-meaning or misguided family and friends. Of course, there does tend to be one total ass-hat who likes to take up space too. The early days of being diagnosed can be increasingly difficult with all of these events that we're expected to attend. Ove...

  14. S5E5 Seasons Of Change with Skye Waggoneer (00:26:10)

    Thank you for listening to today's podcast. Back in September of this year, I re-interviewed Skye from season 2 of Alopecia Life to get an update on how things had changed for Ohna from when she was 9 until now at 13 with regards to school. Back then, It was 2020, and we were talking about back-to-school at a very strange and uncertain time. Today's interview is with Skye only. Ohna has given us the go-ahead and trust to share about her experience through Skye's own perspective. As we move in...

  15. S5E4 Freedom Wigs - It's Not Only a Name, It's a Feeling! with Deanna Beattie (00:54:43)

    Welcome to this episode of Alopecia Life. Today's guest is Deanna Beattie of Freedom Wigs. Freedom Wigs has a unique origin story and an even more unique continuation of that story. As I was talking with Deanna, I discovered more about her as a mother, about someone who has a commitment and passion to provide a superior experience with Freedom Wigs, and takes into consideration knowledge, empathy, and respect for what goes into the process of making something so personal when someone is looki...

  16. S5E3 Adventures For Alopecia - Where the Journey Ends, with Skylar Weaver (00:17:02)

    Welcome to this episode of Alopecia Life. Four years ago, Skylar Weaver set off on his mission to raise alopecia awareness while traveling through central America. As with most adventures and intentions, things come up that cause us to change direction, take a new route, and that's just what happened 7 months into the trip. It was great catching up with Skylar to see what the trip accomplished, not only for his own wellbeing, but also for the families and groups he met throughout the trip. Le...

  17. S5E2 Alopecia Awareness What it Means to Spread Your Sparkle with Eryn Barclay (00:24:54)

    Welcome to this episode of Alopecia Life. It's the month of September, and as many of you know - it's Alopecia Awareness Month. Today's guest is Eryn Barclay. She is a wife and mother, and works full-time for the Walt Disney Company in the entertainment department as a cosmetologist. Eryn shares with us about the origin of Lou & Doe. How it started and the significance of what it has grown into in the last year. Sometimes, we wonder what we can do during alopecia awareness month, and this...

  18. S5E1 504 Plans - How & When to Ask for Accommodations Around Alopecia with Dr. Sherri Barrow (00:45:28)

    Welcome to Season 5 of Alopecia Life. In this first episode, our guest is Dr. Sherri Barrow. Each season, around this time of year we talk about back-to-school and how we can make the school experience a good one for our kids. Looking back as a kid who lived with alopecia areata since the age of 7, I know I needed more support in school. I'm sure many of you would agree based on your own experience - there was very little to no support. Some things have changed since then. There are mor...

  19. S4E28 Season 5 & Alopecia Awareness Month Starting Next Week (00:01:46)

    Next week will be the beginning of Season 5 for Alopecia Life and the beginning of Alopecia Awareness Month. I'm excited to bring you episodes with new and continuing conversations around living with alopecia areata. Thank you so much for listening over the last 4 years. I look forward to another season filled with amazing guests and topics that help us all understand there is a community of support out there who understands. Support the show Alopecia Life provides free resources for school a...

  20. S4E27 Stories from Camp with Angelique, Abbee & Baylee (00:31:00)

    Welcome to this episode of Alopecia Life. This is one of the last ones for the summer of our Stories from Camp series. It was super cool to tune into the sounds of nature again - kids playing a game, birds chirping, and the hum of dragonfly wings. Today's guest is Baylee, and she is being interviewed by Angelique and Abbee who do a great job of asking questions on the fly. Baylee has the sweetest personality, and provides some very touching insight into what it's like in school, along with a ...

  21. S4E26 Back-to-School with Alopecia Recap #2 (00:01:28)

    Welcome to this next episode of Alopecia Life and the Back-to-School recap #2. This is 2020's episode where I interview Artist and Animator, Lydia Hibbert and Kerry Montgomery, the Psychological Wellbeing lead from Alopecia UK where we chat about the importance of raising awareness in a way that kids can relate to. Through their Talking About Alopecia animation, which features voices of children living with alopecia, alopecia awareness has been able to make a difference in a strong and unique...

  22. S4E25 Back-To-School with Alopecia Recap #1 (00:01:03)

    It's that time of year again for kids as they head back to school. Going back to school is often one of the biggest pain points for families, especially if their child has been diagnosed during summer break. This is the first recap of 4 of our back-to-school episodes set up to remind us that even though we cannot control our child's hair loss, we do have the capability of making the education experience better for them, no matter how old they are. These episodes are all setting up for t...

  23. S4E24 Teen Talk with Abbee Tolman (00:33:39)

    Welcome to this episode of Alopecia Life. Today's second episode of Teen Talk is with Abbee Tolman. As she shares her story with us, you may feel memories pop up around sharing about your own hair loss, friendships that have been gained and lost, and the strong sense of self that comes from living with alopecia. I feel lucky to be invited in to listen to Abbee's story, and I have a feeling you will be too. Let's welcome Abbee to Alopecia Life. Thank you so much for sharing your time w...

  24. S4E23 The Pathway from Devastation to Acceptance - One Dad's Journey After His Daughter's Alopecia Diagnosis (00:31:16)

    Thank you so much for listening to this episode of Alopecia Life. We are sitting outside on a perfect day in the Pacific Northwest at the second annual kids CAP camp out on Orcas Island. Today's guest is Brandon James.He is dad to Kennedi and AJ. Brandon's thoughts about Kennedi being viewed as different than other kids was at the top of his mind after hearing she had been diagnosed with alopecia. He's here to share the not-so-easy beginnings, and the journey to embracing Kennedi's alopecia a...

  25. S4E22 Leadership & Alopecia - How the B.A.L.D. Method Can Make a Difference, with Joyel Crawford (00:26:39)

    Welcome to this episode of Alopecia Life. Today's guest is Joyel Crawford. Some of you may have already watched her recent Tedx Talk. Others may have purchased her book "Show Your Ask" - Using Your Voice to Advocate for Yourself and Your Career. It's very cool to see the many ways her work in leadership also relates to her alopecia diagnosis. Check out the show notes for all the awesome ways Joyel is impacting the career and leadership world. Thanks for joining us today for this fun con...

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