Siste episoder av Arthritis Life podcast

1. “Make It Count:" Dani’s Journey With Severe RA, Acceptance, and Strength02.10.2025 (00:59:56)

   Cheryl and Dani dig into the diagnosis saga, evolving RA treatments, the role of acceptance, and why movement is essential to living well with rheumatic disease. For Dani, “movement” isn’t only physical; it’s emotional, spiritual, and educational. If you’re newly diagnosed, this conversation is a powerful reminder to make every day count.Episode at a glance:Dani’s Diagnosis Journey: Cheryl and Dani discuss Dani’s journey to being diagnosed with rheumatoid arthritis.How Dani Rebuilt her Life: Dani recounts how she rebuilt her life after her diagnosis by slowly reintroducing weights and working through mental health challenges. The Importance of Movement: Cheryl and Dani discuss the importance of movement for those with arthritis, beyond physical movement.Make it Count for Dani: Dani and Cheryl delve into Dani’s non-profit organization which provides support and hope for those living with RA.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

2. Remission Myths and Misconceptions, with Dr. Loreto Carmona23.09.2025 (00:19:03)

   On this special episode* of 'Rheumer has It', hosts Eileen and Cheryl are joined by renowned rheumatologist Dr. Loreto Carmona from Spain. The discussion centers around the concept of remission in rheumatoid arthritis (RA), highlighting the differences between medical and patient perspectives on what constitutes remission. Dr. Carmona emphasizes the importance of communication between patients and doctors, the role of medications and lifestyle factors, and the myths surrounding RA remission.This insightful conversation is part of the Canadian Talk Over RA campaign, aimed at providing hope and clear knowledge to those living with RA. See the full show notes on the Arthritis Life website for more details.Episode at a glance:00:31 Meet Dr. Loreto Carmona01:31 Defining Remission in Rheumatoid Arthritis04:26 Misconceptions About Remission07:38 Factors Influencing Remission11:30 The Importance of Communication14:48 Historical Perspectives on RA Treatment16:12 Final Thoughts and ResourcesMedical disclaimer:All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!**Special Episode Sponsor: Talk Over RA CampaignAD - Talk Over RA is more than a campaign — it’s a call to action. This podcast episode is part of the Talk Over RA 2025 campaign and is sponsored by AbbVie Canada. All content and opinions are Eileen Davidson, Cheryl Crow and Dr. Loreto’s own and are not intended to promote any specific pharmaceutical products.Rheumatoid arthritis doesn’t just speak through pain and fatigue — it interrupts plans, drains energy, and creates uncertainty even when symptoms are quiet. The Talk Over RA initiative encourages people living with RA to take back control by speaking up, sharing their experiences, and working with healthcare providers to set meaningful treatment goals.Eileen’s role in this campaign is to provide tools that help you prepare for appointments, explore what remission could look like, and connect with others who truly understand.Don’t let RA speak louder than you. Explore the campaign and download the guide here.For full episode show notesGo to the episode page on the Arthritis Life Website here. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

3. “It’s a Moving Target:” From Athlete to ER Nurse to Life with RA, Emily’s Story18.09.2025 (01:38:44)

   On this episode, Emily and Cheryl discuss how they've come to terms with the fluctuating, non-linear, dynamic nature of rheumatoid arthritis. After being a fierce athlete and playing Division 1 water polo, Emily was diagnosed with rheumatoid arthritis at age 22.  She shares lessons learned while working as a night shift nurse for 12 years and having three children.  Emily opens up about using cannabis as part of her care, the importance of mental health support, and why community has been so vital, especially through Cheryl’s Rheum to THRIVE program. Together, Cheryl and Emily reflect on coping with uncertainty, redefining identity, and what it means to live a good life with RA. This is an encore presentation of episode 85, which first appeared in December, 2022.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes:Go to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

4. Finding Strength after JIA and Macrophage Activation Syndrome: Zac’s Story of Tenacity11.09.2025 (00:59:22)

   Diagnosed at just 15, Zac opens up about the difficult shift from being an active athlete to facing disability caused by arthritis and its complications. He shares how strength training became a turning point and helped him regain mobility, lose weight, and rebuild a fulfilling life. He also explores how his background in strength training helped him survive a near death experience with macrophage activation syndrome.Together, Cheryl and Zac explore the role of exercise in managing arthritis, offering practical tips, tools, and encouragement for others navigating similar challenges. Zac highlights the importance of pairing medical treatment with disciplined strength training to enhance both health and quality of life.Episode at a glance:Zac’s Diagnosis Journey: Zac Spinosa, 28-year-old personal trainer living with Juvenile Idiopathic Arthritis (JIA), shares the challenges of shifting from active athlete to living with disability. Turning Point: How strength training helped Zac regain mobility, lose weight, and rebuild his lifePractical Takeaways: Tips, tools, and advice for using exercise to manage arthritis effectivelyHolistic Approach: The importance of combining medical treatment with disciplined strength trainingInspiration for Listeners: Finding resilience, strength, and quality of life while navigating chronic illnessMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

5. Finding Joy and Purpose: Cheryl’s Rheumatoid Arthritis Story04.09.2025 (00:45:35)

   Cheryl shares her powerful journey of being diagnosed with rheumatoid arthritis (RA) at just 21 years old and reflects on what it was like to go from being a healthy, athletic college student to suddenly navigating pain, fatigue, and disbelief from doctors. She opens up about the emotional toll of feeling dismissed, the relief of finally getting a diagnosis, and the lessons she’s learned about acceptance, self-compassion, and living fully despite chronic illness. She also shares how her experiences led her to create the Rheum to THRIVE educational program and support group, so that no one has to navigate life with RA alone. Cheryl and Dr. Hassett explore the realities of RA that often go misunderstood, from unpredictable flare-ups, invisible symptoms, and the mental health challenges of chronic illness. Cheryl also shares the strategies that help her thrive today: pacing her energy, building community, protecting sleep, and seeking out moments of joy.  If you’re feeling lost or overwhelmed after your own diagnosis, this conversation will remind you that you’re not alone, and that it is possible to find purpose, hope, and connection while living with RA.This conversation originally occurred in 2024 and first appeared on the "Chronic Pain Reset” podcast, hosted by pain psychologist Dr. Afton Hassett. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode detailsGo to the show notes page on the Arthritis Life Website.  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

6. Mindful Social Media and Chronic Illness: Gittel and Cheryl's Journeys28.08.2025 (01:21:17)

   Cheryl and Gittel explore the importance of being mindful with our social media use. While they highlight the risks of falling into negative patterns that can lead to isolation, they also emphasize social media’s powerful potential for connection and support among those living with chronic illness.Gittel shares how participating in online support communities like Rheum to THRIVE has strengthened her self-management and coping strategies. Together, Cheryl and Gittel stress the importance of setting intentional goals for social media use, fostering connection, protecting mental health, and ultimately avoiding the trap of isolation.Episode at a glance:Milestone guest return: Gittel joins the podcast for her fifth appearance and reflections on her journey with Crohn’s disease and ankylosing spondylitis.Rheum To Thrive: Gittel reflects on how her relationship with the Rheum to Thrive program has grown over time.Mindful social media use: Comparing patterns of use, misuse, and abuse to drug use.The double-edged sword of social media: Exploring both its risks (isolation, negative cycles) and benefits (connection, support).Personal impact: Gittel’s story of how online support communities improved her coping and self-management.Practical takeaways: Setting intentional goals for social media to foster connection, protect mental health, and avoid isolation.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

7. Rheumer Has It: Axial Spondyloarthritis Myths v. Facts with Dr. Jean Liew21.08.2025 (00:17:17)

   Dr. Liew  shares her personal journey to becoming a rheumatologist inspired by a friend's diagnosis. She then discusses the condition in detail, addressing common misconceptions such as it being exclusive to white men and always showing up on imaging. Listeners will gain invaluable insights into the challenges of diagnosing this condition, social determinants affecting diagnosis, and reliable resources for further information. This episode is a must-listen for anyone navigating the labyrinth of rheumatic diseases, providing hope and knowledge to help you thrive.Episode at a glance:00:00 Introduction to Rheumer Has It Podcast00:26 Meet Dr. Jean Liew: Expert on Axial Spondyloarthritis00:40 Understanding Axial Spondyloarthritis01:41 Dr. Liew's Journey into Rheumatology04:16 Busting Myths: Axial Spondyloarthritis and Demographics (it’s not just men!)06:50 Challenges in Diagnosing Axial Spondyloarthritis10:27 The Role of HLAB 27 in Axial Spondyloarthritis12:26 Imaging and Axial Spondyloarthritis14:38 Final Thoughts and ResourcesMedical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

8. From Frustration to Inspiration: Melissa’s Journey of Self-Advocacy, Diagnostic Purgatory and Life with Scleroderma14.08.2025 (01:10:08)

   Cheryl and Melissa discuss her experiences in the healthcare system, driven by frustration to become a self-advocate. This led Melissa to write the book Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease, aiming to provide validation and resources for others facing similar struggles. Cheryl and Melissa also touch on the challenges of advocating for oneself, misconceptions in the medical field, the impact of invisible illnesses, and the importance of finding purpose and joy while living with chronic conditions.Episode at a glance:Melissa’s Journey: Cheryl and Melissa discuss Melissa’s long diagnosis journey.Navigating the Healthcare System: Melissa shares what it was like to navigate the healthcare system as a nurse turned patient.Self-Advocacy: Cheryl and Melissa discuss the importance of self advocacy. Melissa’s Book: Melissa shares her journey of writing her new book, Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

9. Rheumer Has It: Separating Myth from Reality for Nutrition and Rheumatic Disease07.08.2025 (00:24:48)

   Drawing from personal experiences and expert insights, they dispel common myths such as the notion that diet alone can treat RA, and also highlight the evidence for some nutrition approaches like the Mediterranean diet as a reliable starting point. The episode underscores the importance of integrating diet and other lifestyle approaches alongside medications for optimal well-being. Whether you're newly diagnosed or navigating your journey, this episode offers clarity on an often confusing topic.Episode at a glance:Myth #1: Diet is all you need to treat / cure RAMyth #2: Dietary interventions are more effective and safe than medicationsMyth #3: It’s an either or - -you have to do diet OR medicationsMedical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

10. Coping with Rheumatoid Arthritis, PCOS and Scleritis: Chelsea’s Story31.07.2025 (00:47:46)

    In this honest and inspiring episode, Cheryl and Chelsea talk about the emotional toll of chronic illness, the power of having a solid support system, and how Chelsea went from feeling isolated to becoming a voice for others. Chelsea opens up about how sharing her story online, especially as a Hispanic woman, helped her find connection, purpose, and strength.If you’re newly diagnosed and feeling overwhelmed, Chelsea’s story is the reminder you need: you’re not alone, and your voice matters. Tune in for talk on therapy, faith, coping tools, and how advocacy can become part of your healing.Episode at a glance:Chelsea’s Diagnosis Journey: Chelsea shares her experience being diagnosed with rheumatoid arthritis, scleritis, and PCOS all in her early 20s.Emotional Rollercoaster: The mental toll of chronic illness and how it impacted Chelsea’s daily life.The Power of Support: Why having a strong support system made all the difference in Chelsea’s chronic illness journey.From Isolation to Advocacy: How sharing her journey online helped Chelsea find connection and purpose—especially as a Hispanic woman navigating the healthcare system.Your Voice Matters: Encouragement for those newly diagnosed—you are not alone, and your story is powerful.Coping Tools: Therapy, faith, and mindset shifts that helped Chelsea regain control.Advocacy as Healing: How turning her pain into purpose became part of Chelsea’s recovery.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

11. Rheumer Has it: Tips for Sleep, with Dr. Deb Da Costa24.07.2025 (00:17:16)

    On this episode, Cheryl & Eileen talk with sleep expert and researcher D. Deborah Da Costa about evidence based interventions to improve sleep in people with rheumatic conditions. Dr. Da Costa explores how sleep challenges are deeply entangled with social and emotional wellbeing as well as pain, fatigue and cognition for those living with rheumatoid arthritis and related conditions. She also overviews Cognitive Behavioral Therapy for Insomnia (CBTI), which is the the gold standard for treating sleep disturbances. Whether it’s resisting social pressure to stay up late or coping with fatigue while caregiving, this episode explores sleep-related struggles and provides specific tips for improving sleep.Episode at a glance:Sleep Is a Critical Yet Underrecognized Component of Arthritis Care: Despite its profound impact, sleep is often neglected in both patient and provider conversations. Poor sleep can worsen arthritis symptoms such as pain, fatigue, depression, anxiety, and cognitive dysfunction—even when the disease is otherwise well-managed.Cognitive Behavioral Therapy for Insomnia (CBTI) Is a Promising Non-Pharmacological Treatment: CBTI is considered the gold standard for treating insomnia without medication. It helps patients reframe negative beliefs about sleep and adopt healthier sleep behaviors, such as limiting screen time in bed and creating a relaxing pre-sleep routine. Internet-based CBTI programs tailored for arthritis patients are currently being piloted.Sleep Challenges Are Deeply Intertwined with Social and Emotional Wellbeing: The podcast highlights how sleep difficulties affect social life, relationships, and self-advocacy. From navigating social pressure to stay up late to managing fatigue while caregiving, the conversation emphasizes the need for greater awareness and support around sleep in the context of chronic illness.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

12. Never Give In, Never Give up, Never Let Go, and Just Keep Fighting: Estela Mata’s Story17.07.2025 (01:02:28)

    She and Cheryl also discuss the complexities of symptom tracking and diagnosis, challenges of treatment, and the importance of self-advocacy and support groups. Estela also highlights her nonprofit organization, Looms for Lupus, which she co-founded with her sisters to provide advocacy, support, and educational resources for those affected by lupus and overlapping conditions. The conversation covers personal coping strategies, the significance of community, and the multifaceted nature of living with chronic illness.Episode at a glance:Estela's Advocacy Journey: Estela's extensive experience in the healthcare industry, working as a medical assistant from a young age, and how her sister’s lupus diagnosis in 2009 propelled her into the world of autoimmune advocacy.Estela’s Diagnosis Journey: Estela shares her long road to a rheumatoid arthritis diagnosis, touching on the difficulties of being seronegative and the importance of tracking and communicating symptoms effectively to healthcare providers.Treatment Challenges: The conversation covers Estela's experience with various treatments, including her struggles with medications, weight gain, hair loss, and how she found resilience through these challenges.Importance of Self-Advocacy: Advice and tips on the necessity of advocating for oneself within the medical system, and the impact it can have on receiving timely and accurate diagnoses.Looms for Lupus: An in-depth look at the foundation Estela co-founded with her sister. They discuss the support groups, educational symposiums, and bilingual resources offered by Looms for Lupus, dedicated to supporting those with lupus, fibromyalgia, mental health challenges, and their caregivers.Personal Coping Strategies: Estela highlights the strategies she employs to manage her health, such as mindfulness, spending time with family, painting, and journaling. She also emphasizes the importance of asking for help and giving oneself grace.Inspirational Advice: Estela's key message to listeners: never give in, never give up, never let go, and just keep fighting. She also underscores the necessity of knitting a community of hope and the importance of laughter and friendship.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

13. Rheumer Has It: 6 Types of Unsolicited Advice and How We Respond10.07.2025 (00:23:15)

    Eileen and Cheryl break down six types of unsolicited advice, including lifestyle interventions, toxic positivity, unqualified medical advice, predatory marketing, wild suggestions, and even well-meaning but unsolicited solid advice. They share their personal experiences and offer practical strategies for responding to these unsolicited suggestions, emphasizing the importance of evidence-based treatments and individualized care. The episode aims to empower listeners to assert their boundaries and make informed decisions about their health.Episode at a glance:Introduction to Rheumer Has ItThe Impact of Unsolicited AdviceTypes of Unsolicited AdviceResponding to Unsolicited AdviceConclusion and TakeawaysMedical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

14. Navigating Psoriatic Arthritis in Alaska: Dawn’s Story03.07.2025 (00:44:30)

    From navigating a complicated healthcare system to managing symptoms in a remote location, Dawn opens up about the real challenges she’s faced, and the tools that help her cope.Together, Dawn and Cheryl explore what it takes to live well with arthritis, from finding the right medications and building an exercise routine, to advocating for yourself and embracing self-care. Dawn also reflects on the power of mindset, gratitude, and simplifying life to focus on what truly matters.If you’re feeling overwhelmed by your diagnosis or unsure where to start, this conversation is full of down-to-earth wisdom, encouragement, and hope.Episode at a glance:Dawn’s Journey: Dawn shares her psoriatic arthritis diagnosis story. Life in Alaska: Dawn and Cheryl discuss the unique challenges of managing healthcare in Alaska. The Power of Exercise and Movement: Dawn shares how movement plays an important role in managing her symptoms. Mental Strength and Resilience: Dawn and Cheryl discuss tools and strategies for mental strength and resilience. Working in the Medical Field with Chronic Illness: Dawn shares her background in the medical field and how it shaped her approach to chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

15. Rheumer Has It: Busting Medication Myths with Dr. Hazelwood26.06.2025 (00:24:23)

    The discussion addresses concerns about medication side effects, the importance of treating rheumatic diseases early, and the false stigma that using advanced treatments indicates more severe disease or personal failure. Dr. Hazelwood emphasizes the importance of balancing risks and benefits and provides insights into how modern treatments can significantly improve quality of life. The episode emphasizes the safety and necessity of these medications and highlights the benefits of starting treatment early to prevent long-term complications. This episode is particularly valuable for anyone newly diagnosed with rheumatoid arthritis who is navigating the complexities and concerns surrounding medication.Episode at a glance:Meet Rheumatologist & Researcher Dr. Glenn Hazelwood:Busting Myths About MedicationsChallenging Stigmas Around Advanced TreatmentsAddressing Misconceptions About Medication UseMedical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl Crow, OT created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

16. Advocacy, Humor and Purpose: Seth’s Spondyloarthritis Story19.06.2025 (01:01:06)

    Seth discusses the challenges and lessons learned from his condition, emphasizing the importance of self-advocacy and humor as coping mechanisms. He also reflects on the 25-year journey of Creaky Joints, which began as a simple idea to connect arthritis sufferers and has grown into a significant patient advocacy and support organization.Cheryl and Seth also discuss the importance of patient voices in research and healthcare policy, the role of advocacy in improving healthcare systems, and the power of community and proper information. This episode highlights the power of advocacy, sharing our stories and remembering you are not alone in your arthritis journey!Episode at a glance:Seth’s Diagnosis Journey: Seth shares his early diagnosis at age 13 with Spondyloarthropathy and how it shaped his perspective.Creaky Joints and Global Healthy Living Foundation Origins: How a simple idea to connect arthritis patients evolved into a major advocacy and support organization over 25 years.Coping Strategies: Cheryl and Seth bond over the value of self-advocacy, humor, and mindset in managing chronic illness.Patient Empowerment and Advocacy: Why patient voices matter in research, healthcare systems, and policy-making.The Power of Community: Cheryl and Seth discuss how connection and reliable information support well-being.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

17. Turning Pain into Purpose, with RA Warrior Cristina Schaefer12.06.2025 (00:53:51)

    Cristina and Cheryl reflect on how RA has shaped their lives, and the deep sense of purpose they’ve found in supporting others on a similar path. They highlight the power of self-advocacy, the comfort of community, and the resilience it takes to live well with RA. If you’re feeling overwhelmed or alone in your diagnosis, this honest and empowering conversation will remind you: you’re not in this alone—and your voice matters.Episode at a glance:Christina’s Journey with Rheumatoid Arthritis: Early symptoms and the relief of finally getting a diagnosis, coping with depression, chronic pain, and postpartum flare-ups,  and navigating treatment options and finding the right doctorThe Power of Self-Advocacy and Community: How this helped Cristina feel more empowered and supported while managing chronic illnessVolunteer Work and Advocacy: How Cristina’s journey with RA has led to her work with the Arthritis FoundationTurning pain into purpose: How RA has led both Cheryl and Cristina to have a passion for helping others and raising awarenessMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

18. Redefining Thriving: Celebrating 5 Years of Rheum to THRIVE06.06.2025 (00:40:07)

    Cheryl, Marisa, Alice, Gittel, Meg and Annette reflect on the profound impact of community, the invaluable educational components, and the collective wisdom that has helped them cope and thrive. The conversation highlights the importance of vulnerability, shared humor, and the supportive environment of the Rheum to THRIVE group, which empowers members to navigate their health challenges and advocate for themselves. Episode at a glance:Celebrating 5 Years of Thrive: Cheryl reflects on the origins of the Rheum to THRIVE program and members share how they found the group and what drew them in.Support Group as Lifeline: Members describe Rheum to THRIVE as a uniquely supportive and safe space that offers emotional validation, practical advice, and deep connection.Power of Peer Support & Representation: Cheryl and Rheum to Thrive members share how hearing others share similar stories helps members feel less alone and seeing others thrive with chronic illness is empowering and inspiring.Tools for Thriving: Members reference helpful resources like the THRIVE Framework, webinars, and guest speakers.The Joy of Community & Shared Identity: Cheryl and the Rheum to Thrive members discuss how inside jokes, celebrations, and shared experiences strengthen group bonds.Lasting Impact of the Program: The Rheum to Thrive members tell Cheryl that they pursued careers in counseling or advocacy inspired by their journey and that Rheum to Thrive supports lifelong learning and personal growth. They also reflect on how the group has helped members through isolation and uncertainty.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE,an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

19. Rheumer Has it: Arthritis Myths, Stigmas, and Misconceptions29.05.2025 (00:22:32)

    They clarify the differences between these terms and provide examples, such as the myth that only elderly people get arthritis, the stigma that people with arthritis are lazy, and the misconception that arthritis is merely mild joint pain. Eileen and Cheryl also emphasize the importance of education and self-advocacy and share personal experiences to illustrate how these misunderstandings can affect mental health. They also highlight resources for further learning and empowerment so you can help bust these myths and bring awareness to the true impact of rheumatic diseases. Episode at a glance:Defining Myths, Stigmas, and Misconceptions: Cheryl and Eileen define the myths, stigmas, and misconceptions related to rheumatic diseases.Personal Experiences with Misconceptions: Cheryl and Eileen delve into their personal experiences with misconceptions of rheumatic diseases. Addressing Stigmas: Cheryl and Eileen address stigmas often associated with rheumatic diseases.Common Myths About Rheumatic Diseases: Cheryl and Eileen discuss the common myths about rheumatic diseases.Impact on Mental Health: Cheryl and Eileen discuss how this topic affects mental health.Final Thoughts and Resources: Cheryl and Eileen highlight resources to help bust myths and bring awareness to rheumatic diseases.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

20. Finding Joy Amidst the Flare-Ups: Riley’s Journey with Multiple Conditions22.05.2025 (01:15:15)

    Riley details her complex and often delayed diagnostic journey, the challenges of navigating the healthcare system, and which treatments have worked best for her.  She also shares how she navigates daily life while living almost exclusively at home due to limited mobility and energy.Cheryl and Riley also discuss the adaptations and strategies Riley uses to manage her conditions and maintain her quality of life, including some special tips for RV living. Riley offers insights into finding peace in the moment, the importance of advocacy, and the reality of thriving in survival mode.  Riley challenges the traditional idea of what it means to thrive, redefining it as being present for micro-moments of connection, joy, or peace . Her story highlights both the physical toll of chronic illness and the emotional strength required to navigate a complex and often dismissive healthcare system.Episode at a glance:Riley's Diagnosis Journey:  Riley shares her journey with multiple autoimmune conditions, including lupus, rheumatoid arthritis, and Sjögren’s syndrome.Treatment Trials and Tribulations: Riley opens up about experiences of medical gaslighting and the emotional toll of being dismissed by providers.The Importance of Advocacy and Self-Care: Riley and Cheryl discuss the power of symptom tracking as a tool for validation and self-advocacy in healthcare.Daily Life Adaptations when you Don’t Leave Home Often: Riley shares her daily tools and strategies that work for her and her family.Finding Micro-Moments of Joy and Redefining Thriving: Riley redefines what it means to thrive—finding value in micro-moments of connection, joy, or stillness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

21. Introducing Rheumer Has It: Busting Myths and Highlighting Evidence for Rheumatic Diseases15.05.2025 (00:14:05)

    In this candid intro episode, you’ll hear how they met online, bonded over the challenges of living with RA, and teamed up to make science-backed info more relatable and easier to understand. Their mission? To bust myths, share real stories, and offer practical tips to help you feel more in control of your health.Whether you’re newly diagnosed, supporting someone with RA, or work in healthcare, this podcast is here to empower you with insights that actually make a difference.Episode at a glance:Cheryl's and Eileens’s Journey with Rheumatoid Arthritis: Both Cheryl and Eileen share their journeys with RA.The Birth of Rheumer Has It Podcast: Cheryl and Eileen discuss how they first connected online through their advocacy work, which eventually led to the creation of Rheumer Has It.What to Expect from Rheumer Has It: Compact, information-dense content from Cheryl, Eileen, and experts. Debunking Myths and Misconceptions: Cheryl and Eileen discuss how this podcast will debunk myths and misconceptions about rheumatic diseases and spotlight scientific evidence in a down-to-earth, digestible format.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

22. From Marriage to Friendships: Reflections on Support Systems with Alice Getchell08.05.2025 (00:29:07)

    They discuss the complexities of managing overlapping conditions and the importance of a strong support system. Alice highlights the invaluable support she receives from her family, friends, church community, and online groups. They also talk about the challenges of explaining chronic illness to others, dealing with unsolicited advice, and finding comfort in relationships. This episode serves as a guide for both patients and their loved ones on fostering understanding and meaningful support.Alice also discusses the significance of finding specialized support groups, such as the 'Rheum to Thrive' community, led by Cheryl. Both Cheryl and Alice stress the importance of open communication, patience, and understanding in building effective support systems. Episode at a glance:Alice's Health Journey: Alice shares her experience living with and navigating multiple chronic conditions such as Rheumatoid arthritis, Sjogren’s syndrome, fibromyalgia, and chronic fatigue syndrome.The Importance of Support from a Strong and Diverse Support System: Cheryl and Alice discuss the importance of support from family and friends, church community, and online support groups. Finding and Building Support Systems: Cheryl and Alice discuss Cheryl’s Rheum to Thrive Program and how a specialized community is valuable in building a support system.Dealing with Misunderstandings and Unsolicited Advice: Cheryl and Alice discuss how to maintain boundaries and navigate unsolicited advice.Reflections on Long-Term Relationships: Alice shares insights from over 50 years marriage.  Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

23. Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada01.05.2025 (01:07:46)

    They discuss practical strategies for rebuilding trust in your body, the critical role of understanding your core values, and how to find the right support — whether through programs like Rheum to Thrive or events like the Virtual Sjögren’s Summit. Together, they show how education, advocacy, and mindset shifts can help patients move from fear to confidence in managing their immune health.Episode at a glance:Sjogren’s and MCAS 101: what is Sjogren’s and MCAS?Dr. Kara Wada’s personal journey: Sjögren’s Disease and mast cell activation syndrome (MCAS) and how it shaped her mission to empower patients.Understanding "Immune Confidence": learning to trust your body again after autoimmune and allergic disease diagnoses.The importance of patient advocacy and education: how Dr. Wada supports patients across multiple states through educational visits.Healthcare system issues: why are complex patients being given the short end of the stick, and what are some creative solutions?Upcoming events and opportunities: the Virtual Sjögren’s Summit and Cheryl’s evolving focus with Rheum to THRIVE.Finding balance between personal life and professional advocacy while living with chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

24. Rheum Champions Tell All, with My Spoonie Sisters24.04.2025 (00:36:35)

    Jenni and Cheryl share the research highlights that stood out the most for them, from new research on POTS and Covid to the importance of sleep and fatigue management. We also shine a light on recent advancements in lupus treatment and managing stress and activity through "positive activity scheduling." Cheryl and Jennifer also share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences. We also reflect on the importance of finding supportive communities.*This episode was originally recorded as part of the My Spoonie Sisters podcast. Episode at a glance:Getting Involved: Patient advocacy and research as “Rheum Champions” with the Rheumatology Research FoundationResearch Highlights: New findings on POTS and Covid, the role of sleep and fatigue management in chronic illness, Advances in lupus treatment, Benefits of positive activity scheduling for stress and activity managementPersonal Insights: Real-life strategies for improving sleep hygiene, Challenging the idea of what’s considered “normal,” The power of sensitive and inclusive languageCommunity & Support: The importance of finding and connecting with supportive communities, Encouragement for those looking to get involved in advocacyMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

25. Navigating the Shift: From Pediatric to Adult Rheumatology with Dr. Jenna Thomason17.04.2025 (01:00:53)

    Dr. Jenna breaks down the key differences between pediatric and adult care, and shares practical tips to help you feel more confident and prepared—whether it’s learning how to speak up during appointments, track your symptoms, or build a support system that really gets it.They also get real about mindset, movement, rest, and how to keep living a full, active life even with rheumatoid arthritis, juvenile idiopathic arthritis or a similar condition in the mix. If you’re feeling unsure about what comes next, this conversation is full of encouragement, clarity, and little ways to start taking charge of your health journey.Episode at a glance:Why the Transition from Pediatric to Adult Rheumatology Care Matters: Understanding the key differences between pediatric and adult rheumatology care.Common Challenges: Navigating new doctors, treatment plans, and increased self-management responsibilities.Self-Advocacy Tips: How to confidently communicate with your new care team and take charge of your health.Building a Support System: The importance of finding a community, whether through friends, family, or patient groups.Finding the Right Rheumatologist: What to look for in a specialist who understands your needs and concerns.Words of Encouragement: Reassurance that you're not alone in this transition and that smoother adjustments are possible with the right resources.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.