Autism Confidential shines a light on the hottest issues in the world of autism, including topics often shunned by conventional media. Who cares for autistic adults after their parents die? How can we fix our broken care system? What interventions help, or hurt? Join hosts Jill Escher, Amy Lutz and others from the National Council on Severe Autism as they take on the hardest questions of autism with leading thinkers and doers.
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Episode #058 - Crisis Care for Severe and Profound Autism (01:18:33)
Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, men...
Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb (01:13:01)
National Council on Severe Autism Webinar, May 15, 2024
We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photo...
Episode #056 - Sounding Off About Autism Month (00:59:41)
Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...
Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism (01:17:50)
Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...
Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled (01:23:55)
Featuring: Ashley Kim, Together for Choice
Jackie Ceonzo, SNACK* NYC
Note: For a video recording with slides, please see NCSAutism.org/webinars.
There is a nationwide shortage of long term supports ...
Episode #053 - Seizures and Epilepsy in Severe and Profound Autism (01:22:24)
This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with speci...
Episode #052 - National Council on Severe Autism Webinar, February 15, 2024 (01:41:27)
National Council on Severe Autism Webinar, February 15, 2024, featuring:
Jill Escher, Escher Fund for Autism
Walter Zahorodny, PhD, Rutgers University
This webinar examines the most important and poor...
Episode #051 - The Reauthorization of the Autism CARES Act (01:18:58)
This episode features Alison Singer, president of Autism Science Foundation, and Craig Snyder of IKON Consulting, discussing why the Autism CARES Act should be reformed before it is re-authorized. Thi...
Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism (00:45:08)
We interview Peg Kerswell, the author of a bold new book chronicling her experiences raising a daughter with extremely severe autism. Ellie is nonverbal and self-injurious, she requires 24/7 care with...
Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism (00:49:43)
We interview Rosanne Katon Walden, the mother of Adam Mandela Walden, a young man with autism with remarkable musical talent. At the age of 2 he taught himself harmonica, and to sign opera phoneticall...
Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism (00:46:34)
Richard Edley, PhD is President/CEO of Rehabilitation and Community Providers Association (RCPA) of Pennsylvania, and a nationally recognized leader pushing for care options for adults with autism and...
Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma (00:49:09)
This interview will blow your mind. You will have just one thought: "We need a thousand more Mary Ogles!" Mary is a force of nature and CEO of A New Leaf near Tulsa, Oklahoma, which serves 500 clients...
Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes (00:42:07)
The next few episodes feature esteemed speakers from the recent Together for Choice conference held in Las Vegas Nevada. First up is Molly Nocon, CEO of Noah Homes in San Diego County, California. Noa...
Episode #045 - How to Be an Autism Advocate in Your State (01:39:40)
State policy is hugely consequential for autism families — from state Medicaid programs, to support worker wages, to health care, to guardianship, to recreation and respite. This week we bring you the...
Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay (01:09:40)
We are delighted to bring back Dr. Alycia Halladay, Chief Science Officer of the Autism Science Foundation, who we first featured way back in Episode 4. Alycia and host Jill Escher debate some of the ...
Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD (00:35:33)
The vaccine-autism myth is rearing its head again, particularly via statements by Democratic presidential candidate Robert F Kennedy, Jr., so it's never been more important to set the record straight ...
Episode #042: Jackie Ceonzo: A Hero Serving Severe Autism in NYC (00:44:36)
If Jill were to create a pantheon of Autism Gods, Jackie Ceonzo would be right there in the center. She is the rare autism mom who struck out to create recreational and enrichment classes and activiti...
Episode # 041 - Jill Gets Deluged by Questions (00:32:44)
Last week, a long-form essay about autism by Jill Escher was published in The Free Press (TheFP.com). The article was about how we have grown increasingly complacent about the autism crisis at a time ...
Episode #040 - Susan Goldstein: A Champion for Autism in Florida (00:42:39)
For nearly three decades an extraordinary autism mom has been pushing the envelope for new programs, new funding streams, and new policies to benefit children and adults with autism. After Susan Golds...
Episode #039 - Sia's' "Autism" and What Does "Autism" Mean Anyway? A Double-Header (00:55:28)
For almost all of its history autism was considered a "pervasive developmental disorder." It involved serious deviations from normal development, serious impairments in communication, social relatedne...
Episode #038 - Dental Care for Patients with Autism, with Dr. Allen Wong, Part 2 (00:33:39)
We again speak with Allen Wong, DDS, is Director of Advanced Education in General Dentistry, Residency Program, University of the Pacific. He teaches dentistry for special health care needs, and hospi...
Episode #037 - Dental Care for Patients with Autism, with Dr. Allen Wong, Part 1 (00:35:23)
By popular request we are featuring two episodes devoted to all things teeth and dentistry, which looms as a huge issue for autism families. Allen Wong, DDS, is Director of Advanced Education in Gener...
Episode #036 - Traveling With Autism: Lara Sandora, Advocate, and Pernell Wint, Beaches Resorts (00:57:19)
As summer approaches, we are happy to feature two perspectives on traveling with autism. First we speak with Lara Sandora, a parent advocate, travel blogger, and special needs vacation home provider. ...
Episode #035 - The HCBS Settings Rule, Part 2 with Melissa Harris, CMS (00:46:21)
In Part 2 of our discussion with Melissa Harris, Deputy Director, Disabled and Elderly Health Programs Group, Centers for Medicare and Medicaid Services (CMS), we focus on the Home and Community Based...
Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS (00:41:46)
We are happy to present a two-part series with Melissa Harris, Deputy Director, Disabled and Elderly Health Programs Group, Centers for Medicare and Medicaid Services (CMS). Her role is to develop and...
