Autism Labs
Business og økonomiFor unge lytterePractical tips and evidence-based guidance to make life easier for you and your severely autistic loved ones.
Siste episoder av Autism Labs podcast
- Vaccines, Tylenol, Leucovorin & Autism: What Parents Need to Know About Common Concerns (00:12:32)
Autism is a lifelong neurodevelopmental condition that ranges from full independence to requiring 24/7 care, as with Mike and Kay’s son Michael. Research has disproven the myth that vaccines cause autism; while acetaminophen use in pregnancy has shown weak associations, experts point to underlying illness as the real risk, and it remains medically recommended. Treatments like leucovorin help only a small subset, though folic acid sometimes calms Michael. After 35 years, Mike stresses that pro...
- The Importance of Structure at Home: Essential Tools We Recommend (00:10:54)
Adding structure to daily routines helps reduce stress, build independence, and prepare individuals with autism for respite or residential care. Unstructured time can lead to boredom and problem behaviors, but visual supports like Picto Selector, TouchChat, and apps such as ChoiceWorks, First Then Visual Schedule HD, Visual Schedule Planner by Good Karma or Lil Planner: Visual Schedule create predictability and choice. These tools turn downtime into skill-building, support decision-making, an...
- Autism Assisted Living: Finding Quality Care For Adults (00:10:39)
Mike Carr shares his family’s experience raising their 35-year-old son, Michael, who is profoundly autistic, mostly nonverbal, and lives with seizures and pica. He asks the urgent question of who will care for children like Michael when parents can’t, and outlines essentials for a true residential “forever home”: near one-to-one staffing, awake overnight staff, communication-first over restraint, medical readiness, transparent data, community and work opportunities, and a culture of dignity a...
- Finding Real Respite Care for Autism: What We Learned Building J13 (00:11:41)
Respite care often fails adults with profound autism or multiple IDDs, who need 1:1 support, medical readiness, and structure. At J13 Community in Austin, respite looks different: no one is expelled for behavior, belonging is guaranteed, and programs build on each person’s strengths with dignity and safety. Starting with day programs—climbing gyms, parks, equine therapy—participants gradually transition to overnight stays. Success relies on skilled staff, safe homes, reliable transportation, ...
- Autism Transition to Adulthood: Finding Life After School Ends (00:11:46)
This episode examines housing options for adults with autism and IDD, noting that 86% still live at home or in group settings, raising concerns about long-term care. Drawing on his family’s experience with a profoundly autistic 35-year-old son, the host reviews five East Coast facilities—Thrive Red Bank (NJ), Melmark Community (MA), Oak Tree Farms (SC), Haven Jakes Place (FL), and Patuxent Commons (MD). Features include sensory-friendly design, private bathrooms, vocational training, intergen...
- Autism Transition to Adulthood: Finding Life After School Ends (00:15:26)
Transitioning to adulthood for people with profound autism often feels like falling off a cliff once school services end. In this episode, Mike Carr shares his wake-up call and the need for early planning, especially with Texas’ 20-year Medicaid waiver waitlist. He stresses teaching daily living skills—like hygiene, dressing, and laundry—and calls for day programs that offer real community integration. Mike highlights Austin’s recreational and vocational options, from sensory-friendly parks t...
- The Secret to Stronger Teams and Programs (00:08:16)
This third episode in the series on transitioning to adulthood explores the role of a “fail safe” culture in autism transition programs—creating psychological safety by normalizing small, low-risk failures as learning opportunities. Mike recounts a bowling outing where a participant became aggressive, prompting a blame-free review that revealed environmental triggers and delayed return of the participant’s iPad. Instead of punishment, the program focused on transparency with parents, better t...
- Autism Transition Programs That Truly Understand (00:06:51)
When profoundly autistic individuals age out of the school system at 22, many families are left without support or options. In this episode of Autism Labs, Mike Carr shares how he and his wife faced this challenge with their nonverbal son, who has seizures and aggressive behaviors. After being told their son was "unemployable" and turned away by programs, they created J13—a program for adults with severe autism and complex needs. J13 offers structured outings, peer connections, and trained st...
- From Panic to Planning: Adult Autism Life Skills that Work (00:14:51)
In this episode of Autism Labs, Mike Carr begins a series on transitioning to adulthood for those with profound autism, sharing research-based strategies and personal stories from raising his 35-year-old son, Michael. He stresses early planning—starting at age 14 with the IEP—and teaches independent living skills like hygiene, dressing, and communication using tools like visual aids, adaptive clothing, and the TouchChat app. Mike also tackles employment challenges, showing how combining work ...
- The Power of Fun: Joyful Experiences for Adults with IDD (00:05:45)
In this episode of Autism Labs, Mike Carr highlights the vital role of fun for those with profound autism. Sharing his son Michael’s love for boating, he shows how joyful, sensory-rich activities can foster deep connection—even for nonverbal individuals. Despite challenges, Mike stresses the value of creating joyful moments. Through his nonprofit John 13 and the R2R program, he champions experiences that prioritize joy, bonding, and meaningful connection.
- Autism Respite Care: A Family's Breakthrough Journey (00:09:52)
In this episode of Autism Labs, Mike Carr shares a milestone: he and his wife are traveling to Italy while their profoundly autistic adult son stays at Denmar House for the first time. Mike reflects on the years of preparation that made this possible and the value of introducing variety into his son's life. From boat rides and movies with peers to theme park struggles and family gatherings, he shows how new experiences—successful or not—can lead to growth, joy, and stronger family connections.
- Applied Behavior Analysis with Autism: A Parent's Journey Through Aggressive Behavior (00:13:05)
In this episode of the Autism Labs podcast, Mike Carr shares his journey with his 35-year-old nonverbal, profoundly autistic son, Michael. He discusses how Applied Behavior Analysis (ABA), when used with empathy and consistency, has helped manage aggressive behavior. Mike explains core ABA principles—like antecedents, behaviors, and consequences—and stresses the importance of not reinforcing negative actions, especially in public. Highlighting the success of J13’s program, he shows that real ...
- Building the Right Team for the IDD Community: Lessons from Decades of Experience (00:10:35)
In this episode of Autism Labs, Mike Carr shares insights on the challenges and lessons learned from decades of hiring staff to support adults with profound autism. He emphasizes the importance of finding team members who are not only reliable and coachable but who also have a genuine calling to serve this community. Beyond experience, traits like optimism, trustworthiness, and a strong spiritual foundation often set the best caregivers apart. Mike introduces the current John 13 team—a divers...
- Thriving with a Severely Autistic Child: Finding Real Support Groups (00:05:41)
In this episode of Autism Labs, Mike Carr shares his journey raising a profoundly autistic, nonverbal son with complex needs. Lacking support, he and his wife founded John13.org, a nonprofit in Austin offering inclusive programs for adults with severe autism. Their summer program and respite care focus on joy, structure, and community integration, showing how thoughtful planning and support can help families thrive.
- 7 Autism Parenting Tips that Actually Work (00:13:00)
Mike Carr shares seven practical autism parenting hacks focused on supporting severely or profoundly autistic individuals. He emphasizes the power of frequently expressing genuine thanks to caregivers and staff, reducing anxiety through improved communication like visual schedules and observing nonverbal cues, and promoting positive behavior with enthusiastic praise. He advises ignoring negative behaviors to avoid reinforcing them, giving undivided attention during shared activities, offering...
- Summer Camp & Autism: Physical Activities that changed everything (00:11:30)
This Autism Labs episode highlights how real-world, community-based experiences can drive meaningful progress for individuals with autism. Mike Carr previews the J13 summer camp, reflecting on last year’s success with activities like rock climbing, horse therapy, and visits to inclusive places like Morgan’s Wonderland. These engaging, social, and novel environments fostered growth, joy, and resilience—especially for those with profound autism—showing that consistent exposure to the real world...
- Medicaid for Autism: Funding Tips for Parents (00:14:19)
In this episode, Mike Carr addresses growing concerns about potential Medicaid cuts and shares practical funding alternatives for families caring for individuals with profound autism or multiple disabilities. He emphasizes the importance of staying hopeful and proactive, offering guidance through his personal experience and upcoming book. Key alternatives discussed include Social Security benefits (SSI and SSDI), Medicaid waivers like CLASS and HCS (each with different funding caps and waitli...
- Instructional Control in Autism: Building Trust, Reducing Stress, and Creating Safety (00:15:59)
In this episode of Autism Labs, Mike Carr shares his struggles with gaining and keeping instructional control—getting his profoundly autistic son to follow directions without resistance. He contrasts his challenges with others' success and stresses that instructional control is about trust, not compliance. Carr discusses using consistency, patience, and positive pairing to become a reinforcing presence, the strategic use of reinforcers, and the need for caregiver consistency. He also outlines...
- 5 Tips for Residential Housing for Profoundly Autistic Adults (00:11:46)
Mike Carr shares five key tips for families seeking residential housing for profoundly autistic adults, based on his 35-year journey with his son. He urges parents to prioritize programs with purpose-driven missions, real community engagement, and clear visions for lifelong growth. Mike highlights his nonprofit, J13, as a fast-growing model focused on joy, connection, and meaningful living.
- Profound Autism: Understanding the Surge and Finding Solutions (00:09:04)
Mike Carr highlights new CDC data showing autism rates rising from 1 in 36 eight-year-olds in 2020 to 1 in 31 by 2022. Reflecting on raising his profoundly autistic son diagnosed in 1990—when rates were about 1 in 10,000—Carr argues the increase isn't just better diagnosis but a real, troubling trend. He suggests RFK Jr.'s claim that autism is a more urgent crisis than COVID deserves attention, given the heavy financial and caregiving burdens. Carr stresses the need for clearer communication ...
- How to Manage Pica Behavior: Practical Tips Every Parent Needs to Know! (00:10:14)
Mike Carr, a father of a 35-year-old son with severe autism, shares his personal experience managing Pica behavior—when individuals eat non-food items. His son has ingested everything from rocks and leaves to toothpaste and deodorant, once even biting into a chlorine tablet from a pool skimmer, which led to a serious health scare. Mike offers practical solutions they've discovered over the years, such as using polyester or knit shirts and cloth napkins to deter chewing, locking up tempting no...
- Creating a Safe Home: Tips for Parents of Children with Profound Autism (00:15:10)
Creating a safe, structured home for a profoundly autistic child means thinking ahead to prevent risks. When my son Michael ingested a chlorine tablet due to pica, it reinforced the need for smart locks, alarms, and cabinet locks to secure hazards and prevent wandering. Managing water intake is also crucial, so we use thumb valves and toilet restrictions. Simple, cost-effective solutions—like a binder clip on a shower door—help balance safety with practicality. Organization fosters independen...
- Creating a Home Program with Insights from our Journey with Profound Autism (00:14:59)
In this episode, parent Mike Carr highlights the power of empathy, creativity, and community in raising a profoundly autistic child. By meeting their adult son Michael’s needs with compassion, fostering teamwork with humor and purpose, and collaborating with schools and insurers, challenges become opportunities. With positivity and collaboration, both the child and caregivers can thrive together.
- From Rejection to Resilience: Building a Better Future for our Autistic Son (00:11:12)
When Mike and Kay Carr’s son Michael, who has severe autism, aged out of school services, they faced limited options and heartbreaking rejections from programs unable to handle his needs. Frustrated but determined, they partnered with Dr. Nina Zuna at UT to create a unique program involving multiple departments. Students earned credit while providing therapy and support for Michael, fostering his growth and gaining invaluable experience. Though funding challenges forced them to scale back, th...
- Revolutionizing Autism Care with AI: How AI can Transform your Life and your Child's Future (00:14:21)
Mike Carr, a parent of a severely autistic adult, envisions AI "Doers" as transformative personal assistants. These advanced tools would seamlessly handle daily tasks, monitor health through wearables, and, for autistic individuals, analyze data to identify stressors, track positive experiences, and offer tailored insights. This innovation holds the potential to improve caregiving, enhance quality of life, and provide invaluable support to families like his.