Autoimmune Adventures
FaktaHelseNavigating chronic illness is a lifelong journey. Don’t travel alone.
Siste episoder av Autoimmune Adventures podcast
- S2 Episode 16: Navigating Chronic Illness Together: Deborah Sharp on Couples, Community, and Care (00:58:58)
Living with chronic illness can feel isolating—but it doesn’t have to. On Autoimmune Adventures, psychotherapist Deborah Sharp shares why bringing your partner in as a teammate—not just a spectator—can make all the difference. Deborah specializes in a cultural relational model of psychotherapy, honoring the impact of culture, identity, and lived experience. With deep expertise in supporting couples navigating chronic and catastrophic illness, she offers powerful insight into how relationships and community can become sources of strength, connection, and resilience. 🎙️ Don’t miss this meaningful conversation! #AutoimmuneAdventures #DeborahSharp #ChronicIllnessSupport #RelationshipHealth #HealingJourney #PodcastRelease
- S2 Episode 15: Garra Lloyd-Lester on Suicide Prevention and Chronic Illness (00:46:49)
This week on Autoimmune Adventures, we pause for a deeper, more serious conversation during Suicide Prevention Week. For many living with chronic illness, the weight of depression, isolation, and even suicidal thoughts is a hidden struggle—one that deserves to be spoken about with honesty and compassion. We’re joined by Garra Lloyd-Lester, Coordinator of Community and Coalition Initiatives at the Suicide Prevention Center of New York State. With more than 30 years of experience in the human services field, Garra has dedicated his career to building safer, more connected communities. Together, we explore: The link between chronic illness and suicide risk Warning signs that loved ones might miss How to reach in and support someone in emotional pain The role of community, peer support, and healthcare providers in prevention Words of hope for anyone who feels overwhelmed by the weight of illness and despair This episode is both a reminder and a lifeline: you are not alone, you are not a burden, and your story matters. 📞 If you or someone you love is struggling, please call or text 988 to connect with the Suicide & Crisis Lifeline.
- S2 Episode 14: Anthony Heard ITP and Fibromyalgia Chronic Disease Advocate (00:59:44)
Join us for a powerful conversation with Anthony Heard, author of My Purple Patch, poet, and rare disease advocate. Anthony shares his journey with Immune Thrombocytopenia (ITP) and fibromyalgia, opening up about the challenges of invisible illness, the path to remission, and the healing power of creative expression. We dive into his book, his poetry, and his advocacy work to shine a light on what it means to live authentically while raising awareness for rare conditions.
- S2 Episode 13: Touched By Type 1 Diabetes with Elizabeth Forrest: Empowering the Chronic Illness Community (00:58:35)
In this episode of Autoimmune Adventures, we sit down with Elizabeth Forrest, founder of Touched By Type 1, an organization dedicated to raising awareness, empowering individuals, and building community for those living with Type 1 Diabetes. Elizabeth shares her journey of turning a diagnosis into a movement that inspires strength, hope, and advocacy. From education to empowerment, Touched By Type 1 is helping change the way people view and live with chronic illness. ✨ Whether you’re living with Type 1, supporting a loved one, or simply want to learn more about advocacy and resilience, this conversation will leave you inspired. 🔗 Learn more about Touched By Type 1: www.touchedbytype1.org #AutoimmuneAdventures #TouchedByType1 #Type1Diabetes #ElizabethForrest #ChronicIllness #AutoimmuneSupport #Advocacy
- S2 Episode 12: Julia Pearce on Grief with Chronic Illness (00:52:24)
Life with chronic illness often brings layers of grief—grief for the life you once had, for the “normal” that keeps shifting, and for the constant reinvention these changes demand. In this episode of Autoimmune Adventures, Stacy and Alysia talk with grief educator and disability advocate Julia Pearce, who shares her wisdom on navigating loss, identity, and the unknown while still holding onto hope and self-worth. Her honesty and compassion offer practical tools and deep encouragement for anyone rebuilding life after diagnosis or supporting a loved one on the journey.
- S2 Episode 11: Shawn Every on Restructuring Your Life After a Chronic Illness Diagnosis (00:48:13)
Life after an autoimmune diagnosis can feel overwhelming—but it can also be the start of something new. In this inspiring conversation, we sit down with Shawn Jackson Every—businesswoman, chronic illness warrior, and master of reinvention—to talk about what it really takes to restructure your life with clarity, compassion, and courage. From redefining success to building strong support systems, setting boundaries, and making room for joy, Shawn shares powerful mindset shifts and practical strategies for moving forward—without losing yourself in the process. Whether you’re newly diagnosed or years into your journey, this episode offers encouragement, real talk, and a reminder that rebuilding doesn’t mean going back—it means creating a life that works for you.
- S2 Episode 10: Self Advocacy with Audrey Pawl Walker (00:52:48)
In this powerful episode of Autoimmune Adventures, we sit down with Audrey Pawl Walker—a dynamic speaker, nonprofit executive, and lupus warrior with over 20 years of lived experience. Audrey created the “Let’s PARTY” framework to help people move from burnout to re-engagement with purpose, energy, and joy—and today, she’s sharing it with us. Audrey opens up about the early days of her lupus diagnosis, the emotional toll of chronic illness, and the moment she realized she needed to advocate for herself in the healthcare system. She offers wisdom on building resilience, protecting your energy, and setting boundaries that support both your health and your happiness. We also talk about: How to prepare for doctor appointments What to do when you feel dismissed by providers Creating routines that empower you—even during flares And what hope looks like after two decades of chronic illness Whether you're newly diagnosed or deep in your journey, this episode is a reminder that you are enough, and your voice matters. ✨ Remember: You are worthy of joy. Your disease does not define your life—you do.
- S2 Episode 9: Stress Management and Building a Strong Support System (00:50:45)
🌿 New Episode Alert! 🎙️ Stress is part of life—but it doesn’t have to run the show. In this episode of Autoimmune Adventures, we’re diving into two powerful tools that help us not only cope, but thrive: stress management strategies and the support systems that hold us up on the hard days. From practical tips to heartfelt truths, we’re sharing how to breathe easier, rest deeper, and build the kind of support that truly sustains. ✨ You’re not alone—and we’re honored to be part of your support system. 🎧 Tune in now and let’s walk this road together.
- S2 Episode 8: Dr. Saara Haapanen on ADHD and Chronic Illness (00:44:39)
🎙️ New Episode of Autoimmune Adventures! What do ADHD, chronic illness, and performance science have in common? This week, we sit down with the powerhouse that is Saara Haapanen—a coach, speaker, and expert in mindset, movement, and motivation. She’s helping high-achieving women rewire their brains, regulate their nervous systems, and reclaim their power—and she’s doing it with science, sass, and a whole lot of heart. 💥 Don’t miss this episode if you’ve ever felt overwhelmed, overstimulated, or just over it. Saara drops truth bombs, laughs with us, and leaves you with tools you can use today. 📺 Watch now and let’s PARTY with purpose. #AutoimmuneAdventures #ADHDAndChronicIllness #SaaraHaapanen #GrowthMindset #WomenWithADHD #ChronicIllnessSupport #PodcastEpisode
- S2 Episode 7: Quality Sleep and Rest (00:35:10)
🛏️💤 Feeling wired but tired? You’re not alone. This week on Autoimmune Adventures, we’re flipping the script from movement to rest—and diving deep into one of our most powerful tools for healing: quality sleep. From restless nights and brain fog to bedtime routines and cozy sleep hacks, we’re talking about how rest isn’t just a luxury—it’s survival, self-love, and essential for anyone living with autoimmune or chronic illness. 🎧 Listen in as Alysia, Becky, and Stacy share real-life strategies, struggles, and sleep wins—including a few laugh-out-loud moments. Your nervous system will thank you. 🔗 Tune in now at autoimmuneadventures.com #AutoimmuneAdventures #SleepMatters #ChronicIllness #AutoimmuneHealing #TheBigSix #YouAreWorthyOfRest #SelfCareIsHealthcare #SpoonieSupport
- S2 Episode 6: Miranda Lee on Self Compassion in Gentle Movement (00:56:06)
Gentle movement isn’t about pushing through pain or proving your strength—it’s about honoring your body and moving with kindness. In this inspiring episode of Autoimmune Adventures, we’re diving into the fourth tenet of our Big Six: Gentle Movement—and we’re thrilled to be joined by Miranda Lee, a mindset coach and yoga teacher who works with individuals navigating cancer recovery, chronic pain, and autoimmune conditions. Together, we talk about how to reframe movement with self-compassion, the pitfalls of the “no pain, no gain” mindset, and how even small, intentional movements can create massive shifts in both physical and emotional well-being. Whether you’re brand new to gentle movement or learning how to reconnect with your body post-diagnosis, this conversation is full of wisdom, practical tools, and hope. 💬 Topics we explore: How to redefine “exercise” when you live with chronic illness Ways to tune into your body and avoid overdoing it Mindset shifts to release guilt and fear around movement Low-impact movement options for joint pain or fatigue Building joyful, sustainable movement routines Supporting mental health through gentle activity Creative ways to make movement fun and approachable 🧘♀️ Movement isn’t about what you can’t do—it’s about discovering what feels good for you. 📌 Miranda’s links and resources are in the show notes. 🎧 Don’t forget to subscribe for more episodes designed to support your autoimmune journey. #AutoimmuneAdventures #FindThatPause #GentleMovement #ChronicIllnessSupport #MindfulMovement #YogaForChronicIllness #SpoonieLife #SelfCompassion #NoPainNoShame #MirandaLee #AutoimmuneWarrior #JoyfulMovement #MovementMatters
- S2 Episode 5: Detox for Liver and Kidneys (00:32:03)
In this episode of Autoimmune Adventures, we’re talking about real-life detox support—no fads, no extremes. Just smart, sustainable ways to reduce toxic load and support your body’s natural systems. Think clean swaps, supportive foods, hydration, movement, and gentle routines that make a difference over time. If you’ve ever wondered whether detoxing matters for autoimmune health—this one’s for you. 🎧 Tune in now at autoimmuneadventures.com or wherever you get your podcasts. #AutoimmuneWellness #DetoxSupport #LiverHealth #KidneyHealth #ChronicIllness #LowToxinLiving #AutoimmuneAdventures #GentleHealing #SustainableDetox
- S2 Episode 4: A Healthy Diet with Guest Justin Janoska (00:41:01)
In this episode of Autoimmune Adventures, we explore one of our Big 6 essentials for thriving with chronic illness: a healthy diet. We're joined by special guest Justin Janoska, clinician, researcher, and founder of The Autoimmune Revolution. Justin breaks down why diet is not one-size-fits-all—and how your relationship with food can either support or sabotage healing. From personalized nutrition to the emotional layers of eating with autoimmunity, this conversation is packed with insight, compassion, and practical advice.
- S2 Episode 3: Interview with Justin Janoska: The Autoimmune Alchemist (00:51:02)
In this episode of Autoimmune Adventures, we sit down with Justin Janoska—clinician, researcher, and founder of The Autoimmune Revolution—to explore how trauma, nutrition, and mindset play powerful roles in living your best life with autoimmune disease. Tune in for real talk, insights, and hope for your healing journey. #AutoimmuneHealing #JustinJanoska #ChronicIllnessSupport #AutoimmuneAdventures
- S2 Episode 2: Growth Mindset and Sense of Humor with Chronic Illness (00:42:42)
In this episode of Autoimmune Adventures, we explore the first principle of our Big Six: cultivating a growth mindset and a sense of humor. Stacy, Alysia, and Becky discuss how shifting your perspective can help you move from feeling stuck to embracing your journey with autoimmunity. They share practical tools like affirmations, mindset reframing, and humor to navigate the ups and downs of chronic illness. From letting go of perfectionism to learning from setbacks, this episode offers science-backed insights and personal stories that highlight the power of patience, self-compassion, and resilience. And yes—sometimes the best medicine really is laughter.
- S2 Episode 1: Charting Your Trek Through Autoimmune and Chronic Illness (00:44:06)
In today's episode we reintroduce the heart of our show—sharing the analogies, metaphors, and real-life stories that make navigating chronic illness a little more relatable (and a lot more fun!). 💬🧠💡 This season, we’re diving deeper into the Big Six 🌟—our six pillars for living well with autoimmunity and chronic illness: 💪 Growth Mindset and Sense of Humor 🥗 Healthy Diet 💧Detox for Liver and Kidneys 🏃♀️ Gentle Movement 😴 Quality Sleep 💞 Stress Management and a Strong Support System 🎥 Welcome to Season Two with an exciting VIDEO experience! We are excited that this will mean more connection, more laughs, and even more ways to support and inspire each other on this wild, wonderful journey. 🌈🙌💻 #AutoimmuneAdventures #Season2Launch 🚀#ChronicIllnessWarriors 💪#AutoimmuneSupport 💚#BigSixWellness 🌿#HealingTogether 💞#MindsetMatters 🧠#LaughThroughIt 😂#AntiInflammatoryLife 🥗#SpoonieStrong 🥄
- S1 Episode 33: Season One Finale - Autoimmune Awareness (00:14:01)
🚨 Big News, Autoimmune Adventurers! 🚨 March is Autoimmune Awareness Month, and we’re wrapping up Season 1 of Autoimmune Adventures with a powerful episode reflecting on what we’ve learned and what’s ahead. 🎙️💙 We’re also dropping an exciting Season 2 announcement—new topics, deeper conversations, and even more incredible guests! You won’t want to miss it! 👀✨ Tune in now and join us in raising awareness for autoimmune diseases. 💪💜 #AutoimmuneAwareness #AutoimmuneAdventures #PodcastSeasonFinale
- S1 Episode 32: Support Systems (00:13:57)
We explore the vital role of support systems for those living with autoimmunity. From local support groups to online communities, discover how connecting with others can provide understanding, comfort, and empowerment on the journey with autoimmune diseases. Join us in celebrating the strength found in community.
- S1 Episode 31: Genetics and Autoimmunity (00:19:34)
We’re exploring how genetics shape autoimmune diseases, sharing our own family’s journey, and diving into groundbreaking research on AI-powered disease prediction. Tune in now to learn how your genes and environment work together in the autoimmune puzzle!
- S1 Episode 30: Healthy Food on a Budget (00:32:00)
Managing an autoimmune condition often means following a strict diet—but eating healthy doesn’t have to break the bank! Tune in and take control of your health—without overspending!
- S1 Episode 29: Weather and Its Effect on Autoimmune Disease (00:24:56)
Weather can have a surprising impact on autoimmune diseases, making symptoms better or worse depending on the temperature, humidity, and even air pressure. In this episode of Autoimmune Adventures, we explore how hot, cold, and changing weather conditions affect the body—and share tips for managing these challenges. Tune in to learn how to navigate the seasons with more ease and comfort!
- S1 Episode 28: Anger and Sadness: Emotional Validation (00:27:27)
Living with an autoimmune disease comes with more than just physical challenges—it can be an emotional rollercoaster. In this episode of Autoimmune Adventures, Becky, Alysia, and I dive into the tough but important topic of managing anger and sadness. 💙 ✨ Tune in now and remember: your emotions are valid, and you are stronger than you think. 💪 #AutoimmuneAdventures #MentalHealth #ChronicIllness #SelfCare
- S1 Episode 27: Infertility and Miscarriage: The Unseen Ascent (00:23:05)
Struggling with infertility and miscarriage can be an incredibly painful and isolating journey, especially for those with autoimmune diseases. In this episode we discuss the complex connection between autoimmunity and reproductive health, sharing insights, medical advancements, and personal experiences to offer hope, understanding, and support to those facing these challenges.
- S1 Episode 26: Navigating the Landscape of Sex and Intimacy (00:21:42)
Autoimmune and chronic illnesses can impact libido and intimacy through hormonal imbalances, fatigue, pain, and mental health challenges. In this episode, we discuss these effects and share practical ways to navigate intimacy, improve communication, and prioritize pleasure. No matter the challenges, a fulfilling and connected sex life is possible.
- S1 Episode 25: Trail Trolls (00:28:34)
Let’s face it—trolls are everywhere, and those of us with autoimmune conditions aren’t immune to their ignorance. 🚫 But here’s the truth: Trolls gonna troll. We hold the power to grant grace where it’s earned, walk away from negativity, and educate when we can. Remember, you are in control. Let’s talk about reclaiming our strength and standing firm in our journey.