Dementia Matters is a podcast about Alzheimer‘s disease and other causes of dementia. Creator and host Dr. Nathaniel Chin interviews leading scientists and caregiving experts to bring listeners the latest in Alzheimer’s disease news, research and caregiver resources. Brought to you by the Wisconsin Alzheimer’s Disease Research Center, find show notes and more resources at adrc.wisc.edu/dementia-matters.
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Reflecting on 2025: The Impact of Gratitude on Brain Health (00:08:07)
As 2025 comes to an end, host Dr. Nathaniel Chin discusses the importance of gratitude for brain health and shares what he’s grateful for from this past year.
Show Notes
Complete the Dementia Matters Feedback Survey to let us know what our show is doing well and how we can improve in the New Year! This anonymous survey will be open until January 14th, 2026 and is estimated to take about 5 minutes to complete.
Read the study Dr. Chin mentions at 0:57, “Association between gratitude, the brain and cognitive function in older adults: Results from the NEIGE study,” on the ScienceDirect website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Talking TBI: The Impact of Traumatic Brain Injuries on Cognitive Decline (00:19:45)
Traumatic brain injuries (TBI) like concussions are not uncommon, especially in children and older adults. These injuries can have both short-term and lasting effects on the brain, but what about their impact on cognitive function? Dr. Deling He of UW–Madison’s Cognitive-Communication in Aging and Neurogenic Disorders Laboratory (CCANDL) lab joins the podcast to discuss her research on the connections between TBI, speech pathology and cognition and what her study findings mean for people with a history of TBI.
Guest: Deling He, PhD, postdoctoral research associate, Cognitive-Communication in Aging and Neurogenic Disorders Laboratory, Department of Communication Sciences and Disorders, UW–Madison
Show Notes
Read the study from the University of California, San Francisco (UCSF), “Traumatic Brain Injury Strikes 1 in 8 Older Americans,” mentioned by Dr. Chin at 0:30 on the UCSF website.
Learn more about Dr. He’s study in the article, “TBI linked to long-term cognitive decline in preclinical Alzheimer’s disease,” published on Healio’s website.
Learn more about the Cognitive-Communication in Aging and Neurogenic Disorders Laboratory (CCANDL) on their lab website.
Learn more about Dr. He on the CCANDL website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
How Occupational Therapists and Speech-Language Pathologists Support Cognitive Health (00:33:55)
When memory, thinking or communication changes begin, knowing where to turn for support can make all the difference. In this episode, we explore how two key health care specialties can help individuals and families meet those challenges with confidence. Sarah Gunderson, an occupational therapist, and Kari Esser, a speech-language pathologist, draw from their work supporting people experiencing a wide range of neurological conditions to walk us through the foundations of their specialties and their unique roles in mild cognitive impairment (MCI) and dementia care. Sarah and Kari also provide a preview of their upcoming talk, “Partnering with Your Healthcare Team,” as part of the 2025 Healthy Living with MCI education program.
Guests: Sarah Gunderson, OT, occupational therapist, UW Health, Kari Esser, MS, CCC-SLP, speech-language pathologist, UW Health
Show Notes
Register and learn more about the upcoming Healthy Living with MCI event featuring Dr. Chin, Sarah Gunderson and Kari Esser, happening on December 12, 2025, and future programs on our website.
Learn more about Sarah from her profile on the UW Health Website.
Learn more about Kari from her profile on the UW Health Website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Study Finds COVID-19 Can Cause Build-up of Alzheimer’s-Related Proteins in Eyes and Brain (00:32:09)
What do COVID-19 brain fog and ophthalmology have to do with Alzheimer’s disease? There may be more connections than one might think. Dr. Sean Miller is one of the scientists behind a recent study that used retinal tissue to investigate the links between COVID-19 infections and the build-up of amyloid and other indicators of Alzheimer’s disease in the central nervous system. Dr. Miller joins the podcast to discuss his research and its implications for COVID and dementia diagnosis and treatments in the future.
Guest: Sean Miller, PhD, research scientist, department of ophthalmology and visual science, Yale School of Medicine, co-investigator, Logan Lab, Endicott College
Show Notes
Read Dr. Miller’s study, “SARS-CoV-2 induces Alzheimer’s disease–related amyloid-β pathology in ex vivo human retinal explants and retinal organoids,” on the journal Science’s website.
Learn more about Dr. Miller at his profile on the Yale School of Medicine website.
Read “Retinal pathological features and proteome signatures of Alzheimer's disease,” mentioned by Dr. Miller at 2:50, on the National Library of Medicine website.
Listen to our past episode, “Long COVID and Its Effect on Cognition,” on our website for more information on how COVID-19 can affect the brain.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Taking a Positive Approach to Dementia Care with Strategies from Teepa Snow (00:51:35)
Caring for someone living with dementia can be both deeply meaningful and incredibly challenging. Finding effective ways to connect, communicate and provide support often requires shifting how we see and respond to changes in the brain. In honor of National Family Caregivers Month, renowned dementia care specialist Teepa Snow joins the podcast to share her insights on improving life with dementia through empathy and understanding. As the founder of Positive Approach to Care (PAC), Teepa has developed the Snow Approach, a set of practical and compassionate techniques designed to empower care partners. She discusses the philosophy behind her methods, the importance of recognizing retained abilities and strategies that can make daily interactions more positive and meaningful for both care partners and those living with dementia.
Guest: Teepa Snow, MS, OTR/L, FAOTA, dementia care specialist, educator, owner, trainer, Positive Approach LLC, co-Founder & chair, Snow Approach Foundation
Show Notes
This episode was uploaded as an exclusive video episode on the Wisconsin ADRC YouTube page on November 5, 2025. Watch the video interview with Teepa Snow here.
Find videos, resources and more on Teepa Snow’s website.
Interested in hearing more from Teepa? Attend Dementia Friendly America’s (DFA) Dementia Friendsgiving on Tuesday, November 18, 2025, to hear her keynote talk on supporting people with dementia in dignified and respectful ways.
Learn more about lecanemab and the eligibility requirements from our past episode, “Looking at Lecanemab’s Eligibility Guidelines and Prescription Process,” on our website.
Learn more about grief and dementia from our past episode, “A Guide to Grief: Strategies for Navigating Loss and Dementia,” on our website.
Learn more about the National Council of Dementia Minds on their website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
A Guide to Grief: Strategies for Navigating Loss and Dementia (00:29:51)
Grief is a complex topic for people with dementia, their loved ones, caregivers and doctors to navigate. Dr. Erica Srinivasan, an expert on the psychology behind grief, joins the podcast to discuss the different kinds of grief people can experience and share strategies and resources for addressing the grief associated with dementia.
Guest: Erica Srinivasan, PhD, associate professor of psychology, University of Wisconsin–La Crosse (UWL), director, Center for Grief and Death Education, lead instructor, Grief Support Specialist Certificate, UW–Madison Continuing Education
Show Notes
Register for Dr. Srinivasan’s Grief Support Specialist Certificate course at the UW–Madison Continuing Education website.
Register for Dr. Srinivasan’s Dementia Support Specialist online courses course at the UW-La Crosse Extended Learning website.
Read more about Dr. Srinivasan at her profile on the UW–La Crosse website.
Listen to our episode “Shining Light on Younger-Onset Dementia with Lorenzo’s House,” mentioned by Dr. Chin at 14:19, on our website.
Learn more about MyGrief, the resource mentioned by Dr. Srinivasan at 22:42, on the Canadian Virtual Hospice’s website.
Learn more about the UK Alzheimer’s Society, mentioned by Dr. Srinivasan at 23:04, on their website.
Learn more about Wisconsin’s Aging and Disability Resource Centers (ADRCs), mentioned by Dr. Srinivasan at 23:13, on the Wisconsin Department of Health Services website. Looking for resources outside of Wisconsin? Find local organizations using the Administration for Community Living’s (ACL) Eldercare Locator.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Clarifying the Alzheimer’s Disease Clinical Trials Landscape (00:29:52)
Clinical trials are essential for improving the lives of those diagnosed with Alzheimer’s disease and related dementias. With so many trials out there, it can be difficult for someone who’s interested in participating in research to know where to start. Dr. Jonathan Graff-Radford joins the podcast to discuss the ins and outs of clinical trials and the state of Alzheimer’s treatments today, as well as share some highlights from his presentation at the National Alzheimer’s Coordinating Center’s (NACC) 2025 Spring ADRC Meeting.
Guest: Jonathan Graff-Radford, MD, behavioral neurologist, associate professor, vice chair, Mayo Clinic Department of Neurology, co-investigator, Mayo Clinic Alzheimer’s Disease Research Center
Show Notes
Read more about Dr. Jonathan Graff-Radford at his profile on Mayo Clinic’s website.
Listen to part one and part two of our series on preclinical Alzheimer’s disease and the AHEAD study with Dr. Reisa Sperling, mentioned at 19:53, on our website.
Learn more about the AHEAD study on their website.
Learn more about clinical trials in Wisconsin at the UW Clinical Trials Institute's website.
Interested in participating in clinical trials? Visit clinicaltrials.gov or Alzheimer's Association's TrialMatch to learn how to get involved.
Learn more and register for the 2025 Fall Community Conversation: Addressing Hearing Loss for Better Brain Health on our website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Making Sense of Microplastics: New Research Looks at How Microplastics Build Up in the Brain and Body (00:31:00)
Microplastics are a growing concern in the field of environmental health, but their impact on the brain is only beginning to be understood. Joining the podcast to share the latest research on these tiny particles, which have been found in the brain and other parts of the body, is Dr. Matthew Campen, a leading researcher in the field whose work is helping to uncover how environmental exposures like the accumulation of microplastics could affect neurological health, dementia risk and more.
Guest: Matthew Campen, PhD, MSPH, director, New Mexico Center for Metals in Biology and Medicine, director, University of New Mexico Clinical and Translational Sciences Center KL2 Mentored Career Development Program, deputy director, Training Core director, UNM Metal Exposure and Toxicity Assessment on Tribal Lands in the Southwest (UNM METALS) Superfund Research Program Center, professor, University of New Mexico Health Sciences Center
Show Notes
Learn more about Dr. Campen and his research at his profile on the University of New Mexico website.
Read Dr. Campen’s article, “Bioaccumulation of microplastics in decedent human brains,” published by Nature Medicine on Nature’s website.
Read “Nanoplastic concentrations across the North Atlantic,” the research article Dr. Campen mentioned at 23:08, on Nature’s website.
Read “The Story You’ve Been Told About Recycling is a Lie,” the opinion piece Dr. Campen mentioned at 25:40, on The New York Times website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Identifying and Addressing Changes in Decision-Making Ability with Capacity Testing (00:37:04)
As an individual develops dementia, they may need support in many areas of their lives. One of these areas is decision-making, particularly regarding health care decisions, but how can someone or their loved one determine if they need support with decision-making? To answer these questions, Dr. Victoria Williams joins to discuss capacity and capacity testing. She dives into the different kinds of decision-making abilities that can be assessed, the signs that one may need an assessment and more, as well as shares a preview of her upcoming Healthy Living with Mild Cognitive Impairment (MCI) program, “Cognitive Testing and Brain Imaging Explained.”
Guest: Victoria Williams, PhD, neuropsychologist, UW Health, assistant professor, Department of Medicine, University of Wisconsin School of Medicine and Public Health
Show Notes
Register and learn more about Dr. Williams’ upcoming Healthy Living with MCI event, happening on September 12, 2025, and future programs on our website.
Learn more about Dr. Williams at her bio on the UW Health website.
Listen to Dr. Williams’ past episode, “The Fundamentals of Neuropsychology: Breaking Down Cognition, Memory and More,” on our website, Spotify, Apple Podcasts and wherever you listen.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Mindfulness and Meditation Practices for Living with MCI (00:26:30)
Receiving a diagnosis of mild cognitive impairment (MCI) or dementia can be an emotional and challenging experience. How can meditative practices support those living with MCI? Buddhist chaplain Sharon Lukert wrote her book, Until My Memory Fails Me, with the goal of sharing mindfulness and spiritual practices that have helped her since being diagnosed with MCI in 2021. She joins the podcast to share how her spirituality has impacted her journey to a diagnosis as well as strategies on navigating emotional struggles and building community for those living with MCI.
Guest: Sharon Lukert, author, Buddhist chaplain
Show Notes
Learn more about Sharon Lukert and her book, Until My Memory Fails Me, on her website.
Register for the Wisconsin ADRC’s Healthy Living with Mild Cognitive Impairment education series on our website.
Learn about the Wisconsin ADRC’s involvement in the development of new blood tests, mentioned by Mrs. Lukert at 12:50, on our website.
Interested in hearing more about what it’s like being involved in Alzheimer’s disease research? Listen to the Dementia Matters four-part series, “Voices of Research Participants,” on our website and wherever you listen.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Under the FTLD Umbrella: A Deep Dive into Frontotemporal Dementia (00:38:30)
Frontotemporal lobar degeneration (FTLD) is one of the most common causes of dementia in individuals under the age of 60, yet it remains lesser known and often misunderstood. From the early symptoms to the challenges of diagnosis and treatment, FTLD presents unique hurdles for clinicians, researchers and families alike. Joining the podcast to discuss this complex disease is Dr. Brad Boeve, principal investigator of the ALLFTD study, a major national research effort aimed at identifying biomarkers and clinical tools to improve early detection of FTLD and prepare for future treatment trials.
Guest: Brad Boeve, MD, neurologist, Department of Neurology and Center for Sleep Medicine, professor of neurology, Division of Behavioral Neurology, Mayo Clinic, co-director, Mayo Clinic Alzheimer’s Disease Research Center, principal investigator, ARTFL-LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) research study
Show Notes
Are you a clinician interested in receiving continuing education (CE) credits for listening to this episode? Find credit designation information, disclosures and evaluation information on our website and on the UW–Madison Interprofessional Continuing Education Partnership (ICEP) website. The accreditation for this course expires 8/12/2026. After this date, you will no longer be able to access the course or claim credit.
Learn more about Dr. Boeve and his research at his profile on the Mayo Clinic website.
Listen to our episode with Dr. Wolk, “LATE, Explained,” mentioned by Dr. Chin at 10:12 on our website.
Visit the Association for Frontotemporal Degeneration (AFTD) website, mentioned by Dr. Boeve at 21:59.
Visit the CurePSP website mentioned by Dr. Boeve at 22:21.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Helpful or Harmful? New Study Looks at the Impact of Technology Use on Cognition (00:44:41)
Smartphones and technology are ubiquitous in nearly every aspect of our lives, but is technology helping or hurting us when it comes to memory and cognition? Dr. Jared Benge, neuropsychologist and associate professor from the University of Texas at Austin, joins the podcast to discuss his research into how technology and smartphone use impacts the brain, how digital technology can be used to help individuals with cognitive impairment and what his findings mean for the future.
Guest: Jared Benge, PhD, ABPP, clinical neuropsychologist, Comprehensive Memory Center, UT Health Austin, associate professor, Dell Medical School, University of Texas at Austin
Show Notes
Read Dr. Benge’s article, “A meta-analysis of technology use and cognitive aging,” on the journal Nature’s website.
Learn more about Dr. Benge at his profile on UT Health Austin’s website.
Read Dr. Benge’s study on the use of smartphone technology to improve prospective memory functioning at the Journal of American Geriatrics Society.
Dementia Matters is nominated for the 2025 Podcast Awards in the Science and Medicine and People’s Choice categories. Register and vote online before July 31 to support our podcast.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Facing the Facts: Looking at the Alzheimer’s Association’s 2025 Annual Report (00:19:55)
What is the current impact of Alzheimer’s disease and related dementias on the United States? To best understand its significance in 2025, we can turn to the Alzheimer’s Association’s Alzheimer’s Disease Facts and Figures report, a comprehensive resource that highlights the effect of Alzheimer’s on individuals, care partners, health care professionals and more. Dr. Heather Snyder from the Alzheimer’s Association joins the podcast to discuss key trends and findings from this year’s report, including insights from their special report on Americans’ attitudes toward early detection and new monoclonal antibody treatments.
Guest: Heather Snyder, PhD, senior vice president, medical & scientific relations, Alzheimer’s Association
Show Notes
Read the 2025 Alzheimer’s Disease Facts and Figures report and special report from the Alzheimer’s Association on their website.
Download and print the 2025 Alzheimer’s Disease Facts and Figures infographic on their website.
Read about Dr. Snyder on her profile on the Alzheimer’s Association website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Paying the Price: The Cost of Dementia in 2025 (00:32:53)
How much does it cost to live with dementia in the United States? The hidden costs are often overlooked, but these numbers and trends are important to understand in order to inform the public and effectively allocate resources. Dr. Julie Zissimopoulos leads The United States Cost of Dementia Project, where they recently published a report on the total cost of dementia in 2025. Dr. Zissimopoulos joins the podcast to discuss the report’s findings and analyze what this means for patients and families, as well as for public policy, in the future.
Guest: Julie Zissimopoulos, PhD, professor, Sol Price School of Public Policy, University of Southern California (USC), co-lead, United States Cost of Dementia Project, co-director, Aging and Cognition Research Program, USC Schaeffer Center, director, Alzheimer’s Disease and Alzheimer’s Disease Related Dementias Resource Center for Minority Aging Research (USC AD/ADRDRCMAR), Center for Advancing Sociodemographic and Economic Study of Alzheimer’s Disease and Related Dementias (CeAES-ADRD)
Show Notes
Learn more about Dr. Julie Zissimopoulos at her profile on the USC Schaeffer Center’s website.
Read “The Cost of Dementia in 2025” report on the USC Schaeffer Institute for Public Policy & Government Service website.
Learn more about the United States Cost of Dementia Project on their website.
Read about new Wisconsin legislation that seeks to help those with Alzheimer’s and their caregivers in the article, “How a bill in the Wisconsin Legislature seeks to help Alzheimer's caregivers” by the Milwaukee Journal Sentinel.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Harnessing Habits: The Power of Routines on the Brain (00:44:38)
Everyone has habits. Some are beneficial for brain health while others are less so, but it turns out that habits as simple as brushing your teeth at the same time each morning can help your brain adapt to changes from cognitive impairment. Dr. Gordon Giles joins the podcast to dive into the fascinating world of neurological rehabilitation and how building small, consistent habits can rewire the brain and support healthy lifestyle choices. He also gives a sneak peek into his upcoming talk for the Healthy Living with Mild Cognitive Impairment (MCI) program titled “Unlocking the Power of Habits, Routines and Strategies.”
Guest: Gordon Giles, PhD, OTR/L FAOTA, professor emeritus, Samuel Merritt University
Show Notes
Learn more about Dr. Giles at his profile on the Samuel Merritt University website.
Register and learn more about Dr. Giles’ upcoming Healthy Living with MCI event, happening on June 20, 2025, and future programs on our website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Aging in Place: Addressing the Challenges of Living Alone with Dementia (00:36:39)
It’s estimated that 4.3 million older adults across the United States live alone with cognitive impairment. How do these individuals navigate the challenges and concerns that arise due to these memory and thinking changes, and what recommendations are there to support them as they continue living independently? Dr. Elena Portacolone joins Dementia Matters to discuss her research focused on identifying these challenges and developing equitable policies and programs for older adults living alone with cognitive impairment in the United States and worldwide.
Guest: Elena Portacolone, PhD, MBA, MPH, principal investigator, Living Alone with Cognitive Impairment Project, professor of sociology, Institute for Health & Aging, Pepper Center Scholar, Division of Geriatric Medicine, University of California San Francisco (UCSF)
Show Notes
Read more about Dr. Portacolone and her work at her profile on UCSF’s website.
Learn more about UCSF’s Living Alone with Cognitive Impairment project, led by Dr. Portacolone, on their website.
Learn about the Guiding an Improved Dementia Experience (GUIDE) Model, mentioned by Dr. Portacolone at 22:51, on the Centers for Medicare and Medicaid Services (CMS) website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Family Ties: How Family History Affects Alzheimer’s Risk (00:36:52)
How important is one’s family history when determining Alzheimer’s risk? Returning guests Drs. Jessica Langbaum and Sterling Johnson discuss the latest research on family history and genetic risk factors and share their perspectives on the topic, specifically focusing on the role of the APOE gene as a risk factor.
Guests: Sterling Johnson, PhD, leader, Wisconsin Registry for Alzheimer’s Prevention (WRAP), associate director, Wisconsin Alzheimer’s Disease Research Center, associate director, Wisconsin Alzheimer’s Institute, lead principal investigator, ADRC Consortium for Clarity in ADRD Research Through Imaging (CLARiTI), Jean R. Finley Professor of Geriatrics and Dementia, UW School of Medicine and Public Health, and Jessica Langbaum, PhD, senior director of research strategy, Banner Alzheimer’s Institute, overseer, Observational Research Program, Clinical Trials Program, Alzheimer’s Prevention Initiative, director, Alzheimer’s Prevention Registry, director, Arizona Alzheimer’s Disease Research Center
Show Notes
Read Dr. Langbaum’s viewpoint, “The Risk of Alzheimer Disease in APOE4 Homozygotes,” on the Journal of American Medical Association (JAMA) website.
Read Dr. Johnson’s article, “APOE4 homozygosity represents a distinct genetic form of Alzheimer’s disease,” on Nature Medicine’s website.
Read Dr. Chin’s opinion piece, “What to do if your family has a history of Alzheimer’s,” mentioned at 2:04 on the Wisconsin State Journal’s website. Please note there is a paywall to access the article.
Read Dr. Tobey Betthauser’s paper, “Multi-method investigation of factors influencing amyloid onset and impairment in three cohorts,” mentioned by Dr. Johnson at 16:50, on the National Library of Medicine’s website.
Learn more about the Banner Alzheimer’s Institute on their website.
Read about the GeneMatch program from the Alzheimer’s Prevention Registry on their website.
Learn more about the Arizona Alzheimer’s Disease Research Center on their website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Explaining Dementia to Kids Through the Power of Children’s Books (00:44:17)
Having a relative or loved one receive a dementia diagnosis can be challenging for families, especially for families with children. How can parents, guardians and other adults explain these complex memory and thinking changes to children in a way they’ll understand? One possible way – children’s books. Dr. Tomás León joins the podcast to discuss his collection of children’s books focused on different kinds of dementia, including Alzheimer’s disease, frontotemporal dementia, Lewy body dementia and vascular dementia. He discusses his inspiration for the four stories, the writing and translation process, and the importance of helping children understand what’s happening to their loved ones, as well as shares advice on how to address these difficult conversations.
Guest: Tomás León, MD, psychiatrist, Memory and Neuropsychiatry Clinic, Hospital del Salvador, Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI)
Show Notes
Read more about Dr. León’s children’s books and download copies of the Here’s Grandma! collection for free in English and Spanish on the Global Brain Health Institute’s website.
Learn more about Dr. León through his profile on the Global Brain Health Institute’s website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Training the Next Generation: How the Research Education Component Supports Early Career Researchers (00:28:40)
The Research Education Component (REC) focuses on educating, mentoring and training the next generation of researchers at the over 30 Alzheimer’s Disease Research Centers (ADRCs) across the United States, offering a range of fellowships, educational activities and events like the annual Alzheimer’s Disease and Related Dementias (ADRD) Research Day. In honor of this year’s ADRD Research Day, early career researchers Isa Hayde and Dr. Yang Yeh join the podcast to discuss how REC has impacted their research journeys, as well as share a preview of their lightning presentations.
Guests: Isa Hayde, undergraduate student, Clark Lab, and Yang Yeh, PhD, postdoctoral fellow, Lamming Lab
Show Notes
Learn more about REC and the Wisconsin ADRC’s Alzheimer’s Disease and Related Dementias Research Day on our website.
Listen to the podcast with Drs. Barb Bendlin and Tyler Ulland, “Gut Feelings: The Links Between Gut Health and Alzheimer’s Disease,” mentioned by Dr. Chin at 5:30, on our website, Spotify, Apple Podcasts and all other major podcast platforms.
Learn more about Dr. Yang Yeh and the Lamming Lab on the Lamming Lab website.
Learn more about Dr. Lindsay Clark’s lab on their website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Talking about Tau: The Role of Tau PET Scans in Alzheimer’s Research and Care (00:55:33)
Early detection is a top priority in the field of Alzheimer’s research, and one indicator of Alzheimer’s disease is the buildup of tau in the brain. What is tau, though? How can we detect this protein, and what can it tell us about a person’s symptoms or disease progression? Dr. Gil Rabinovici, a leader in the field of brain imaging, joins Dementia Matters this week for an in-depth discussion on the role of tau PET scans in Alzheimer’s disease detection, research and clinical care.
Guest: Gil Rabinovici, MD, professor, Department of Neurology, University of California San Francisco (UCSF), director, UCSF Alzheimer’s Disease Research Center, study chair, Imaging Dementia-Evidence for Amyloid Scanning (IDEAS) and New IDEAS studies, co-principal investigator, Alzheimer’s Network for Treatment and Diagnostics (ALZ-NET), Longitudinal Evaluation of Alzheimer’s Disease Study (LEADS)
Show Notes
Are you a clinician interested in receiving continuing education (CE) credits for listening to this episode? Find credit designation information, disclosures and evaluation information on our website and on the UW–Madison Interprofessional Continuing Education Partnership (ICEP) website. The accreditation for this course expires 4/7/2026. After this date, you will no longer be able to access the course or claim credit.
Read “Criteria for Diagnosis and Staging of Alzheimer's Disease,” mentioned by Dr. Rabinovici at 18:43, on the Alzheimer’s Association’s website.
Listen to our past episode with Dr. David Wolk, “LATE, Explained,” mentioned by Dr. Rabinovici at 26:31 on Spotify, Apple Podcasts and on our website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Changing the Narrative: One Man’s Journey to Alzheimer’s Diagnosis and Treatment (00:28:50)
Receiving a diagnosis of Alzheimer’s disease or a related dementia can be a complicated experience. While some experience relief at being able to put a name to their concerns, many worry about telling loved ones or being treated differently due to the stigma surrounding the word “dementia.” Mike Zuendel joins the podcast to share his experience of being diagnosed with Mild Cognitive Impairment (MCI) due to Alzheimer’s disease and how he’s pushing back against the stigma surrounding dementia. He also talks about how early detection and treatment have allowed him to lead a normal life with cognitive impairment.
Guest: Mike Zuendel, member, board of directors, Banner Alzheimer’s Institute Foundation, member, Alzheimer’s Patient Advisory Board, Center for Information and Study on Clinical Research Participation, founder, Initiative to Change the D-Word, founder, CEO, Legacy Bridge Private Family Offices
Show Notes
Learn more about Mike Zuendel on his profile on the Initiative to Change the D-Word’s website.
Learn more about MCI by listening to other MCI-related episodes of Dementia Matters.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
A Pathway to Wellness: The Benefits of Integrative Medicine on Brain Health (00:29:58)
Holistic medicine, alternative medicine, complementary medicine – you may have heard these terms or seen them used online and wondered what they mean. Each term refers to the concept of integrative medicine, a comprehensive approach to healthcare that focuses on treating a person’s mind, body and spirit rather than addressing symptoms or a specific disease through a combination of medical treatments and other evidence-based therapies. By integrating practices like nutrition, mindfulness, supplements and other alternative therapies with traditional care, integrative medicine aims to promote overall wellness, enhance healing and improve quality of life, especially for individuals managing chronic conditions like dementia. Dr. David Rakel, a leader in integrative medicine, joins the podcast to share about how this holistic approach can help people experiencing memory change and how diet, mindset and lifestyle can play a crucial role in supporting brain health.
Guest: David Rakel, MD, professor, chair, University of Wisconsin Department of Family Medicine and Community Health, founder, University of Wisconsin Osher Center for Integrative Health
Show Notes
Learn more information about the Healthy Living With Mild Cognitive Impairment (MCI) program and register for upcoming events by visiting our website.
Learn more about Dr. Rakel from his profile on the UW Madison Department of Family Medicine and Community Health website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Putting a ‘Spotlight on Care’: Caregivers Help Other Caregivers Through Podcast Series (00:40:10)
Caring for a loved one with Alzheimer’s disease or a related dementia can be challenging, with no two journeys being the same. Who better to turn to for caregiving support, tips and advice, then, than other caregivers who have been on similar paths? Steve O’Leary and Virginia Naeve join Dementia Matters to share their different experiences caring for their partner and parent respectively, their goal to help other caregivers on their journeys through their podcast Spotlight on Care and more.
Guests: Steve O’Leary, co-host, Spotlight on Care, member, leadership council, University of California, Irvine Institute for Memory Impairments and Neurological Disorders (UCI MIND), and Virginia Naeve, co-host, Spotlight on Care, volunteer, UCI MIND
Show Notes
Listen to the Spotlight on Care podcast on the UCI MIND website, Apple Podcasts, Spotify or wherever you listen to podcasts.
Read Virginia’s blog, A New Path for Mom, online.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
Shining Light on Younger-Onset Dementia with Lorenzo’s House (00:41:02)
Dementia diagnoses affect families in many different ways. One of the most challenging to navigate is that of younger-onset dementia (YOD), a form of dementia that affects someone below the age of 65. This diagnosis can be particularly jarring for young families, as resources, support and research for this form of dementia are limited. When Diana Cose’s husband Lorenzo received this diagnosis, she decided to change that by founding Lorenzo’s House, a nonprofit that supports families grappling with younger-onset dementia and works toward lessening the stigma surrounding it. Diana Cose joins the podcast with programs lead Patti LeFleur to share their experiences with younger-onset dementia and how Lorenzo’s House brings light in the darkness.
Guests: Diana Cose, founding executive director, Lorenzo’s House, Patti LeFleur, youth and lighthouse outreach lead, Lorenzo’s House
Show Notes
Learn more about Lorenzo’s House and their free programs on their website.
Follow Lorenzo’s House on their Instagram, Facebook and LinkedIn for updates and more information.
Learn about early-onset dementia, mentioned by Dr. Chin at 27:30, listen to our episode with Dr. Susanne Seeger, “Early-onset Alzheimer’s Disease: What to Know and What to Expect” on our website.
Learn more about the documentary on autosomal dominant Alzheimer’s disease, mentioned by Dr. Chin at 28:05, on CBS News’ website and watch the documentary on Paramount+.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
What Now? Next Steps After Receiving an MCI Diagnosis (00:44:42)
What exactly does a mild cognitive impairment (MCI) diagnosis mean, and what should you do after receiving one? Hearing this diagnosis from a doctor can bring up a lot of emotions and questions for individuals and family members. Jennifer McAlister joins Dementia Matters to offer advice for next steps after receiving an MCI diagnosis and share strategies and resources that have been successful for individuals she’s worked with over the course of her career.
Guest: Jennifer McAlister, outreach and partnerships manager, Outreach, Recruitment & Engagement Core, Wisconsin Alzheimer’s Disease Research Center
Show Notes
Find Jen’s “Next Steps After Diagnosis” flowchart, mentioned at 41:22, on our website and as a PDF.
View and download a PDF of the decision-making tool, mentioned at 28:57, online.
Learn more about the Wisconsin ADRC’s Healthy Living with Mild Cognitive Impairment (MCI) series on our website.
Watch the Healthy Living with MCI series on YouTube.
Learn more about MCI by listening to our past podcast episode, “Our Evolving Understanding of Mild Cognitive Impairment” on our website, Spotify, Apple Podcasts, and all podcast platforms.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s. All donations go toward outreach and production.
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